To see a full list of our Support Group offerings, please click here.
*Please be sure to check our online calendar for any scheduling changes.*
Join us for an informative webinar on cerebrospinal fluid (CSF) leaks, a condition that can significantly impact individuals with Marfan syndrome and other hereditary connective tissue disorders.
Are you or a loved one recently diagnosed with Loeys-Dietz syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.
Health Fair testing will take place on July 10, and evaluations will occur on July 11.
The Conference kicks off the evening of July 11 and ends about 1:00 p.m. on Sunday.
Conference Location:
Hyatt Regency Atlanta
265 Peachtree Road NE
Atlanta, GA 30303
Are you or a loved one recently diagnosed with Loeys-Dietz syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.
This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.
This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.
Are you or a loved one recently diagnosed with Loeys-Dietz syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
The Marfan Foundation and the University of Michigan’s MI-AORTA team present a full-day educational opportunity for individuals and families living with Marfan, Loeys-Dietz, VEDS, and related conditions. The event includes a Creating Connections luncheon, which enables attendees to network with the speakers and connect with other people in the area who also have their condition.
This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.
Are you or a loved one recently diagnosed with Loeys-Dietz syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
We’re celebrating our 6th year of raising awareness for Loeys-Dietz syndrome (LDS) by declaring March as Loeys-Dietz awareness month!
This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.
Are you or a loved one recently diagnosed with Loeys-Dietz syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
The Marfan Foundation, Cleveland Clinic, and IndoUSRare are offering this unique learning opportunity for individuals and families living with Marfan syndrome. The speakers will provide an overview of the heart issues related to Marfan syndrome, as well as address medications, imaging, surgery, and physical activity guidelines.
This webinar will discuss Dural Ectasia in both Marfan and Loeys Dietz Syndrome. Dr. Wouter Schievink, Director of the Microvascular Neurosurgery Program at Cedars-Sinai will explain what Dural Ectasia is, the symptoms, as well as treatment options.
This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.
Are you or a loved one recently diagnosed with Loeys-Dietz syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.
Are you or a loved one recently diagnosed with Loeys-Dietz syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
Living with a chronic illness presents unique challenges that can significantly impact both physical and emotional well-being. This webinar explores how mindfulness practices can serve as valuable tools for managing the daily stresses and uncertainties that come with chronic health conditions.
This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.
Are you or a loved one recently diagnosed with Loeys-Dietz syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
The Marfan Foundation and Morristown Medical Center, part of Atlantic Health System, welcome you to attend the New Jersey Regional Symposium.
Join us on November 4 at 7:00 p.m. Eastern as Dr. Shaine A. Morris of Texas Children’s Hospital and Dr. Ronald Lacro of Boston Children’s Hospital discuss key takeaways from the American Heart Association’s (AHA’s) scientific statement on the cardiovascular management of aortopathy in children.
The Marfan Foundation and the Lahey Hospital & Medical Center welcome you to attend the New England Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS.
El simposio se puede ver desde cualquier parte del mundo con un teléfono inteligente, tableta, computadora de escritorio o portátil y conexión a Internet. La inscripción es gratuita.
Únase a nosotros nuestro simposio, Mejorando su Vida con Marfan, Loeys-Dietz y VEDS. Las presentaciones, que contarán con la participación de expertos médicos de Puerto Rico y otras partes de los Estados Unidos, estarán dirigidas a las personas afectadas y sus familias.
Please join us for a full-day CME course, Marfan, Loeys-Dietz, and VEDS Symposium 2024: The Latest on Diagnosis and Management. This course offers 7.0 credits (accreditation statement). The presentations, which will feature local medical experts and experts from other parts of the US, will be delivered in English and geared to affected people and their families.
This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.
Are you or a loved one recently diagnosed with Loeys-Dietz syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.
Are you or a loved one recently diagnosed with Loeys-Dietz syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
This support group is for people with Loeys-Dietz syndrome or a related conditions who are interested in exploring various ways to deal with pain.
Are you or a loved one recently diagnosed with Loeys-Dietz syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.
