Mental Health

Mental health refers to psychological, emotional, and social well-being. While most people with chronic conditions focus on their physical health, mental health is often ignored. Our body and mind are interconnected, therefore, it’s important to take care of both. Having a connective tissue condition isn’t easy, so give your mind the TLC it needs.

Together with the Marfan Foundation we have a collection useful mental health resources, including a Help and Resource Center, Virtual Support Groups, and so much more.

Get Mental Health Resources

Are you experiencing a crisis? Dial 988 for Suicide Hotline in the U.S. or visit Lifeline (988lifeline.org). Outside the U.S. visit International Suicide Resources.

 

Upcoming Virtual Support Groups

Events
LDS International Connect Support Group
May 28
LDS International Connect Support Group

The LDS International Connect is a support group for any person living with Loeys-Dietz Syndrome, as well as parents and caregivers of people with Loeys-Dietz Syndrome. This group is intended for community members living outside of the United States. It is conducted in English. The LDS International Connect meets on the 4th Monday of each month at 2 pm EST.

LDS Connect Support Group
Jun 11
LDS Connect Support Group

Have you been diagnosed with Loeys-Dietz syndrome? This group is a space to talk and connect with people in the community and share what you’re going through with others who understand. The group meets on the second Thursday of every month from 7-8 pm ET.

Support for Parents/Guardians of Children w/Marfan, LDS, related conditions
Jun 17
Support for Parents/Guardians of Children w/Marfan, LDS, related conditions

Are you are a parent or guardian of a child with Marfan syndrome, Loeys-Dietz syndrome or a related connective tissue condition? Is your child 18 years old and younger? If so, we invite you to join other parents to discuss the challenges of raising a child with one of these conditions.

LDS Connect Support Group
Jul 9
LDS Connect Support Group

Have you been diagnosed with Loeys-Dietz syndrome? This group is a space to talk and connect with people in the community and share what you’re going through with others who understand. The group meets on the second Thursday of every month from 7-8 pm ET.