Mental Health

Mental health refers to psychological, emotional, and social well-being. While most people with chronic conditions focus on their physical health, mental health is often ignored. Our body and mind are interconnected, therefore, it’s important to take care of both. Having a connective tissue condition isn’t easy, so give your mind the TLC it needs.

Together with the Marfan Foundation we have a collection useful mental health resources, including a Help and Resource Center, Virtual Support Groups, and so much more.

Are you experiencing a crisis? Dial 988 for Suicide Hotline in the U.S. or visit Lifeline (988lifeline.org). Outside the U.S. visit International Suicide Resources.

 

Upcoming Virtual Support Groups

Events
Marfan and Related Conditions Connect
May 1
Marfan and Related Conditions Connect
LDS Connect Support Group
May 8
LDS Connect Support Group

Have you been diagnosed with Loeys-Dietz syndrome? This group is a space to talk and connect with people in the community and share what you’re going through with others who understand. The group meets on the second Thursday of every month from 7-8 pm ET.

A Time to Talk: Monday Matters!
May 12
A Time to Talk: Monday Matters!

Join others in our connective tissue condition communities to share concerns and discuss issues related to everyday life. You will feel supported, heard, and enjoy the time spent with others.

Coping with Grief and Loss
May 13
Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful. If you have lost a loved one to Marfan syndrome or a related disorder and would like to connect with others who know what you are going through, please sign up for this group.

Marfan and Related Conditions Connect
Jun 5
Marfan and Related Conditions Connect
A Time to Talk: Monday Matters!
Jun 9
A Time to Talk: Monday Matters!

Join others in our connective tissue condition communities to share concerns and discuss issues related to everyday life. You will feel supported, heard, and enjoy the time spent with others.

Coping with Grief and Loss
Jun 10
Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful. If you have lost a loved one to Marfan syndrome or a related disorder and would like to connect with others who know what you are going through, please sign up for this group.

LDS Connect Support Group
Jun 12
LDS Connect Support Group

Have you been diagnosed with Loeys-Dietz syndrome? This group is a space to talk and connect with people in the community and share what you’re going through with others who understand. The group meets on the second Thursday of every month from 7-8 pm ET.