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20 Years of Awareness
 

 Webinars

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Upcoming Webinars

Register to participate in an upcoming webinar.

Events
Lifecycle of the Aorta (LIVE)
Feb 23
Lifecycle of the Aorta (LIVE)

Please join us for a webinar on the Lifecycle of the Aorta, a presentation from the Genetic Aortic Network, a division of The Marfan Foundation. Do you ever wonder what's normal for the aorta and what's due to a genetic aortic condition? This webinar will focus on the aorta from childhood, through adulthood, and into the senior years. The presenters are Dr. Glen Iannucci, Children's Hospital of Atlanta, Dr. Michelle Lim, Central Sydney Cardiology (Australia), and Dr. Juan Bowen, Mayo Clinic/Rochester, MN. In addition to the presentations, there will be plenty of time to ask questions.

Lifecycle of the Aorta: Replay with Live Q & A
Feb 25
Lifecycle of the Aorta: Replay with Live Q & A

Do you ever wonder what's normal for the aorta and what's due to a genetic aortic condition? If you were unable to join us for the live webinar on Lifecycle of the Aorta, here is another chance to view the webinar and ask questions as Dr. Elena Cervi, from the Great Ormond Street Hospital in London, will be joining us LIVE.

How to Read a Genetic Testing Report

How to Read a Genetic Testing Report: A Practical Guide for Individuals and Families

Join the Marfan Foundation and its divisions on February 25 at 7:00 p.m. ET for an overview of how to read and understand a genetic testing report for individuals with Marfan, LDS, VEDS, Stickler, and other genetic aortic and vascular conditions.

Peter Byers, MD, Founder and Director of the Collagen Diagnostic Laboratory at the University of Washington and a member of the Marfan Foundation’s professional advisory board, will explain the key components of a typical report, define common vocabulary, and demystify how genetic variants and mutations are described.

Attendees will learn about the different classifications, what information to focus on, and how to interpret results in a meaningful way.

This webinar is free to attend but registration is required.

Aortic Emergencies: Webinar for Aussies and Kiwis
Mar 17
Aortic Emergencies: Webinar for Aussies and Kiwis

Please join us for a webinar on aortic emergencies that is geared toward people living in Australia and New Zealand. Dr. Michelle Lim, a member of the Foundation's Genetic Aortic Network Education Working Group, leads this effort for Aussies and Kiwis. The featured speakers are Dr. Benjamin Robinson, Consultant Cardiothoracic Surgeon at Royal Prince Alfred Hospital, and Dr. Geoffrey Lester, an aortic dissection survivor who is a vascular and internal medicine physician, researcher, health economist, and the head of Think Aorta Australia and New Zealand. Learn from the experts and have your questions answered.

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Webinar Replays

 

The Loeys Dietz Syndrome Foundation has a designated playlist on The Marfan Foundation’s YouTube channel. Here, you will find all recorded webinars and presentations, as well as stories from members of our community.

View YouTube Playlist

Explore even more resources on our website.