Stories of Hope

Help the LDSF build connections within its community by sharing your story with us. These stories are used on the website, social media and distributed through newsletters. Everyone’s LDS journey is important and we would love to hear about yours. 


Share Your Story


How has living with Loeys-Dietz Syndrome changed your life? We want to hear your story! Create awareness, and send us your story about what it means to you to Heal Hearts and Inspire Hope!

Name *
Phone *
When is your birthday? *
When is your birthday?
Are you 18 years or older? *
May we share your story publicly on our website and social media accounts? *