The LDSF has standing volunteer committees focused on Development & Fundraising, Marketing, Education, Outreach and Conference. We know that people have busy lives, and we appreciate all our volunteers, whether its 30 minutes or 3 hours a month! We are happy to talk with you about your passion, skill set and time commitment. 

The Loeys-Dietz Syndrome Foundation is always looking for more people to get involved and join our community. If you have a request or would like to help the LDSF further our mission, please complete the form below or email info@loeysdietz.org directly.


To contact us about volunteer opportunities, Please complete the form below.

Name *