The Marfan Foundation and Norton Children’s Heart Institute present an educational opportunity for individuals and families living with Marfan, Loeys-Dietz, VEDS, and related conditions. This informative and engaging event will provide the latest updates on treatment and quality of life issues, and includes opportunities to network with the speakers and connect with other people in the area who are also living with these conditions.

A light breakfast, networking break, and lunch will be provided. There is no fee to attend, but registration is required.

Children

There will be a program with activities for children ages 5-12. For more information and to register your child/children, please contact Lori McCormick, lori.mccormick@nortonhealthcare.org.

Hotel Accommodations

Symposium registrants are eligible for a discounted rate at the Cambria Hotel, 120 South Floyd Street. Follow this link to book your room at the discounted rate.

Transportation

If transportation is an issue for you, please contact Eileen at enovins@marfan.org by February 25. Please include your name, the number of people, and where you live. We may be able to help.