To see a full list of our Support Group offerings, please click here.
*Please be sure to check our online calendar for any scheduling changes.*
Health Fair testing will take place on July 10, and evaluations will occur on July 11.
The Conference kicks off the evening of July 11 and ends about 1:00 p.m. on Sunday.
Conference Location:
Hyatt Regency Atlanta
265 Peachtree Road NE
Atlanta, GA 30303
The Marfan Foundation’s Global Virtual Conference connects people living with genetic aortic and vascular conditions, their loved ones, healthcare providers, and researchers from around the world for a unique event that holistically explores the many facets of life with Marfan, Loeys-Dietz, VEDS, and related conditions.
Join us in Chicago for The Marfan Foundation’s 39th Annual Conference!
The Marfan Foundation’s Science in Paris meeting will take place August 29- September 1, 2022. The goal of the meeting is to bring together national and international researchers and clinicians focused on genetic aortic and vascular conditions, enhancing collaboration and discovery to ultimately benefit patients and families.
This four day event will feature three separate, but connected, scientific meetings on Vascular Ehlers-Danlos Syndrome (Day 1), Marfan, Loeys-Dietz, and related syndromes (Days 2 and 3), and the GenTAC Aortic Summit (Day 4). Clinicians in all disciplines, surgeons, and researchers are welcome to attend.
After three years, we are excited to announce the E3 Conference will be July 7-10, 2022 in person at Newport Beach, California! We have an amazing program including tracks for Marfan, VEDS, Loeys-Dietz, Stickler, and more. Register Now!
Loeys-Dietz Syndrome Prom Night is a virtual event with fun activities for all ages. Throw on your favorite dress, suit, or new fav stay at home PJs and come ready for fun!
Every year, we hold an annual conference which provides people living with Marfan syndrome and related conditions, and their families, an opportunity to learn about these conditions from the country’s medical experts, hear about the latest research, and connect with other people who are on the same medical journey.
