Filtering by: Research
The Marfan Foundation’s Global Virtual Conference
Jun
17
to Jun 22
Education, Conference, Connection, Research, Webinar, Symposium

The Marfan Foundation’s Global Virtual Conference

The Marfan Foundation’s Global Virtual Conference connects people living with genetic aortic and vascular conditions, their loved ones, healthcare providers, and researchers from around the world for a unique event that holistically explores the many facets of life with Marfan, Loeys-Dietz, VEDS, and related conditions.

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LDS Women’s Health Beyond Family Planning
Apr
25
7:30 PM19:30
Education, Research, Webinar

LDS Women’s Health Beyond Family Planning

This webinar will be presented by a panel of medical experts and moderated by Melissa Russo, MD. We will discuss women's issues beyond family planning, including, but not limited to, endometriosis, perimenopause and menopause, hormonal support, and uterine prolapse. There will be time to get your questions answered.

While the content will be tailored to individuals living with Loeys-Dietz syndrome, others with similar genetic aortic and vascular conditions may find it helpful.

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Research Webinar: Exploration of a Novel Biomarker and the Connective Tissues Community
Jan
26
12:00 PM12:00
Education, Research, Webinar

Research Webinar: Exploration of a Novel Biomarker and the Connective Tissues Community

Researchers, Dr. Bart Loeys and Aline Verstraeten will discuss their exciting new research on a novel biomarker for thoracic aortic aneurysm and dissection. They will share why biomarker research is important and its potential impact on the Loeys-Dietz syndrome and connective tissue communities. 

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The Marfan Foundation Presents: Science in Paris
Aug
29
to Sep 1
Conference, Research, Education

The Marfan Foundation Presents: Science in Paris

The Marfan Foundation’s Science in Paris meeting will take place August 29- September 1, 2022. The goal of the meeting is to bring together national and international researchers and clinicians focused on genetic aortic and vascular conditions, enhancing collaboration and discovery to ultimately benefit patients and families.

This four day event will feature three separate, but connected, scientific meetings on Vascular Ehlers-Danlos Syndrome (Day 1), Marfan, Loeys-Dietz, and related syndromes (Days 2 and 3), and the GenTAC Aortic Summit (Day 4). Clinicians in all disciplines, surgeons, and researchers are welcome to attend.

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International Patient Meeting: What’s New in Genetic Aortic and Vascular Conditions
Aug
28
10:00 AM10:00
Research, Connection

International Patient Meeting: What’s New in Genetic Aortic and Vascular Conditions

Please join us for our Second International Patient Symposium, which will feature medical presentations on the diagnosis, medical and surgical treatments, and genetics, as well as the latest research on Marfan, Loeys-Dietz, VEDS, and related genetic aortic and vascular conditions. Register Now!

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Surgery Series: Aortic Arch
Feb
22
9:00 PM21:00
Education, Research

Surgery Series: Aortic Arch

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Join us on February 22, 2021, at 7pm ET for a webinar on Aortic Arch Surgery presented by Dr. Anthony Caffarelli, Director of the Elaine & Robert Matranga Aortic Center at Hoag Hospital in Newport Beach, CA. You will receive a link to the Zoom Webinar via email.

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Surgery Series: Open Thoracoabdominal Repair
Feb
16
9:00 PM21:00
Education, Research

Surgery Series: Open Thoracoabdominal Repair

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Join us on February 16, 2021, at 7pm ET for a webinar on Open Thoracoabdominal Repair Surgery presented by Dr. Joseph Coselli, Professor, Vice-Chair and Chief, Division of Cardiothoracic Surgery at Baylor College of Medicine. You will receive a link to the Zoom Webinar via email.

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