Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions. Together, we raise awareness and help families get the best medical care from leading experts. Together, we help fund events and programs that improve the lives of our community: support groups, symposiums, conferences, Camp Victory for kids, life-saving research, and more! 

Join us for a fun afternoon as we spread awarness and raise funds to support The Marfan Foundation mission! Walk for Victory is family-friendly event to spend time with community, enjoy lunch, kids activities, and a short, non-competitive walk. 

Join us for a fun afternoon as we spread awarness and raise funds to support The Marfan Foundation mission! Walk for Victory is family-friendly event to spend time with community, enjoy lunch, kids activities, and a short, non-competitive walk. 

We’re celebrating our 6th year of raising awareness for Loeys-Dietz syndrome (LDS) by declaring March as Loeys-Dietz awareness month!

Join us for a special evening at the Chicago HeartWorks Gala on Friday, February 21, as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for our loved ones affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular conditions.

You are invited to join us for a special evening at the 4th Annual Houston HeartWorks Gala on Friday, November 22, as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for our loved ones affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular conditions.

You are invited to join us for a special evening at a tasting event on Thursday, October 24th at 6 PM, as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for those affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular conditions.

Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids activities, and a short, non-competitive walk.

Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids activities, and a short, non-competitive walk.

Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids activities, and a short, non-competitive walk.

Join us on Saturday, June 15 for the 2024 Iowa Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Join us on Saturday, May 11 for the 2024 Global Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Join us on Saturday, June 15 for the 2024 Philadelphia Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Join us on Saturday, June 15 for the 2024 Milwaukee Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

We’re celebrating our 6th year of raising awareness for Loeys-Dietz syndrome (LDS) by declaring June as Loeys-Dietz awareness month! Keep an eye out for #RealReels on social media (new community stories), updated resources on our website, including a refreshed Emergency Alert card, and join us by showing your commitment on LDS Day of Giving on June 12th!

Join us on Saturday, June 8 for the 2024 Chicago Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Join us on Saturday, June 8 for the 2024 Pacific Northwest Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Join us on Sunday, June 2 for the 2024 Boston Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Join us on Saturday, June 1 for the 2024 NYC Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Your presence will ignite the sparkle at the iconic Rainbow Room on May 21 when you attend the Marfan Foundation’s signature event, the HeartWorks Gala in Manhattan. You’ll help save and improve the lives of people impacted by genetic aortic and vascular conditions while you enjoy a brilliant evening of cocktails, dinner, and entertainment amid the company of top supporters from across the nation.

Join us on Sunday, May 19 for the 2024 Denver Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Join us on Saturday, May 18 for the 2024 Pittsburgh Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Join us on Saturday, May 4 for the 2024 Northern California Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Join us on Saturday, May 4 for the 2024 Northern California Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Join us for a special evening as we celebrate the 15th Anniversary of the Heartworks Gala St. Louis on Saturday, April 27th, as we come together to support the life-saving mission of The Marfan Foundation and build a brighter future for our loved ones affected by Marfan syndrome, Loeys-Dietz syndrome, VEDS, and related genetic aortic and vascular conditions.

Join us on Sunday, April 21 for the 2024 Atlanta Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Join us on Saturday, April 20 for the 2024 Raleigh Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.

Join us on Sunday, March 3 for the 2024 Phoenix Walk for Victory! Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers-Danlos (VEDS), and related conditions community together.