Upcoming Events

Events
Support for Young Adults with Marfan, VEDS, LDS and related conditions
Mar 24
Connection, Virtual Support Groups
Support for Young Adults with Marfan, VEDS, LDS and related conditions
Connection, Virtual Support Groups

Have you been diagnosed with Marfan syndrome, VEDS, Loeys-Dietz syndrome or another related condition? Are you between the ages of 18 and 30?  Would you like to connect with others in your age group? If so, this support group is for you.

Connection, Virtual Support Groups
Kentucky Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS
Mar 28
Education, Connection, Symposium
Kentucky Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS
Education, Connection, Symposium

The Marfan Foundation and Norton Children’s Heart Institute present an educational opportunity for individuals and families living with Marfan, Loeys-Dietz, VEDS, and related conditions. This informative and engaging event will provide the latest updates on treatment and quality of life issues, and includes opportunities to network with the speakers and connect with other people in the area who are also living with these conditions.

Education, Connection, Symposium
Walk for Victory - Southern California
Mar 28
Connection, Walks
Walk for Victory - Southern California
Connection, Walks

Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids’ activities, and a short, non-competitive walk.

Connection, Walks
Insights from the LDS Natural History Study at NIH: Audiology and Otology
Apr 8
Webinar
Insights from the LDS Natural History Study at NIH: Audiology and Otology
Webinar

Insights from the LDS Natural History Study at NIH: Audiology and Otology offers an in-depth look at hearing and ear-related findings emerging from the Loeys-Dietz Syndrome (LDS) Natural History Study conducted at the National Institutes of Health. This webinar will be led by NIH experts Dr. Jeffrey Kim, D.D.S and Julie Christensen, M.S., who will share current insights into audiology and otology as they relate to individuals living with LDS.

Webinar
LDS Connect Support Group
Apr 9
Virtual Support Groups, Connection
LDS Connect Support Group
Virtual Support Groups, Connection

Have you been diagnosed with Loeys-Dietz syndrome? This group is a space to talk and connect with people in the community and share what you’re going through with others who understand. The group meets on the second Thursday of every month from 7-8 pm ET.

Virtual Support Groups, Connection
Walk for Victory - Nashville
Apr 11
Connection, Walks
Walk for Victory - Nashville
Connection, Walks

Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids’ activities, and a short, non-competitive walk.

Connection, Walks
Simposio virtuale sulle sindromi di Marfan, Loeys-Dietz, VEDS e Stickler
Apr 18
Education, Connection
Simposio virtuale sulle sindromi di Marfan, Loeys-Dietz, VEDS e Stickler
Education, Connection
Education, Connection
Walk for Victory - Tampa
Apr 25
Connection, Walks
Walk for Victory - Tampa
Connection, Walks

Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids activities, and a short, non-competitive walk.

Connection, Walks
Walk for Victory - Raleigh
Apr 25
Connection, Walks
Walk for Victory - Raleigh
Connection, Walks

Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids activities, and a short, non-competitive walk.

Connection, Walks
Memorable Moments Luncheon
May 3
Memorable Moments Luncheon

The Memorable Moments Luncheon is a special event designed to highlight and celebrate significant programs that make a difference in the community. Led by Co-Chairs Alix Jennings & Barbara Lerman, the luncheon will highlight three key programs: Camp Victory, The Marfan Foundation Annual Conference, and The Sydney Lerman Hospitality Program. This luncheon aims to bring together supporters, volunteers, and stakeholders to share the impact these initiatives have had and continue to have in the community. Throughout the event, attendees will learn about the successes, stories, and future goals of these programs while enjoying a memorable and inspiring gathering. The luncheon promises to be an opportunity for connection, reflection, and hope, as well as a way to support and celebrate these important causes.

Walk for Victory - Denver
May 9
Connection, Walks
Walk for Victory - Denver
Connection, Walks

Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids’ activities, and a short, non-competitive walk.

Connection, Walks
Walk for Victory - New York
May 9
Connection, Walks
Walk for Victory - New York
Connection, Walks

Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids activities, and a short, non-competitive walk.

Connection, Walks