This collection of children’s books has been thoughtfully curated to support families navigating hospital visits, chronic or rare conditions, visible differences, big feelings, and resilience. While these books are not condition-specific medical guidance, they offer comfort, understanding, and language for conversations that can sometimes feel hard to start.
Read MoreMany individuals with Loeys-Dietz syndrome (LDS) report having food allergies, sinus disease, asthma, seasonal/environmental allergies, eczema and/or ear/respiratory infections more than other individuals. Because each person with LDS is different, it is important to talk with your doctor about what care is right for you.
Read MoreLoeys-Dietz syndrome (LDS) is a genetic disorder that affects the connective tissue in the body. The disorder was first observed and described by Dr. Bart Loeys and Dr. Hal Dietz at the Johns Hopkins University School of Medicine in 2005.
Read MoreMany individuals with Loeys-Dietz syndrome (LDS) have gastrointestinal issues.
Read MoreThese Frequently Asked Questions (FAQ) are a compilation of questions we commonly receive through our support groups and Help Center. Each answer has been carefully reviewed and provided by our expert team, including our Chief Science Officer, Help and Resource Center Director, LDS Director, and Dr. Hal Dietz.
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