More than two decades after Loeys-Dietz syndrome (LDS) was first identified, an updated management primer is redefining how clinicians understand and care for the condition.
The recommendations in the original LDS primer, published in 2014, helped establish basic standards of care for what was still considered a newly recognized connective tissue condition. At the time, the guidance was highly focused on one thing: preventing catastrophic aortic events.
Thanks to the generosity of our supporters, the Foundation awarded five new research grants. These two-year grants include two Innovator Awards and three Victor McKusick Fellowship Awards. The research projects focus on aortic dissection and thoracic aortic aneurysms.
Read MoreThe Marfan Foundation has awarded its largest research grant in history, the Everest Award, as well as $600,000 in other new grants to physicians/scientists as part of its Research Grant program, bringing current total grant funding to $1,285,500.
Read MoreA meta-analysis of seven global clinical trials with data from 1442 participants with Marfan syndrome has been completed and published today in The Lancet. The primary aim of the meta-analysis was to estimate the effects of angiotensin receptor blockers (ARB) and beta-blockers on the rate of aortic root enlargement patients with Marfan syndrome.
Read MoreThe Marfan Foundation, which has funded 158 in research grants and initiatives since 1989, is proud to announce it has updated its research grant program to have a more significant impact on scientific advances to improve the lives of people with Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. The new grants are designed to encourage and support transformational science.
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