After accepting that there's always going to be complications down the road, I found that my world didn’t grow smaller like I feared it would. Instead, it expanded. How I chose to overcome these ‘bumps in the road’ have defined who I have become.
Read MoreI was born and raised in New Orleans, LA. I just made the big 40 in June and I could not be more excited! My 30s were a mix of the absolute worst and unbelievably best times of my life.
Read MoreFor us, the LDS conference is a home coming. We belong. We are family. We know that no matter what we are welcomed. This conference in June will be our third.
Read MoreThis month marks the 14th anniversary of the identification of Loeys-Dietz syndrome. It also marks the 7th anniversary of my daughter Aileen’s death from a ruptured aortic aneurysm at the age of 24.
Read MoreAs a previous Neonatal Intensive Care Nurse when Mo was born in 1995, I longed for a place to connect with others as well as find the most up-to-date information in the care of my daughter.
Read MoreI was initially trained as a pediatrician and a cardiologist. I was quite happy participating in the care of individuals. But simply became frustrated that what we were doing at the time didn’t seem to be making a difference.
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