To see a full list of our Support Group offerings, please click here.
*Please be sure to check our online calendar for any scheduling changes.*
Are you cool like Batman, stealthy like Spiderman, or strong like Wonder Woman? Post a pic dressed as your favorite superhero for our final day of Spirit Week!
From a cool fedora to a comfy ball cap, we all have our favorite headwear. Post a pic with your favorite hat
Who doesn’t love lounging in bunny slippers and sweats all day?! Post a picture in your favorite jammies!
What team do you root for the most? Post a picture on social media sporting your favorite jersey or team gear!
Sport your Loeys-Dietz Syndrome Foundation gear and post a photo on social media!
We’re hosting a virtual scavenger hunt open to kids of all ages on Saturday, June 13 at 2pm and 4pm EST! On this one-hour video call we will announce items to find around your home and there will be points for the first to bring it back on screen. The winner will get some Loeys-Dietz swag and bragging rights!
Join all those impacted with connective tissue disorder to be UNITED in VICTORY! As we have seen, “community” is not about living in a specific zip code; rather, it is a place where people feel a sense of belonging and it is frequently online.
