From long, flexible limbs to surgery scars, living with the physical markers of Marfan, Loeys-Dietz, and related conditions can weigh on a person's body image. This 90-minute personal perspectives webinar is led by Dr. Brad MacNeil, a licensed clinical psychologist and assistant professor at Midwestern University in Glendale, Arizona. Panelists Kendra DiPinto (Marfan), Adriana Rivera (Marfan), and Brandon Crawford (LDS) share their thoughts and experience with body image and living with Marfan and Loeys-Dietz syndrome.
This discussion focuses on body image questions relating to Marfan and Loeys-Dietz but can apply to many conditions presenting with external features.