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Volunteer

The Loeys-Dietz Syndrome Foundation is always looking for more people to get involved and join our community. If you have a request or would like to help the LDSF further our mission, please email This email address is being protected from spambots. You need JavaScript enabled to view it..

Currently we are looking for the following volunteers:

    • Roadmap volunteers: Join a committee and help create essential materials that will impact those on the LDS journey at various age levels. Current projects include "Where to Start?", "Transitions" and "Growing Older with LDS."

 

    • State Fundraising Application Volunteer: Because we are a national organization and participate in online-fundraising, we are looking for a volunteer to help create a spreadsheet of state requirements and help with filing to ensure the LDSF meets all state requirements for fundraising. This volunteer needs to be organized and willing to wade through various state listings and resource books.

 

    • Grant Searchers: We know that we cannot move forward substantially without applying for and receiving grant support. We are looking for volunteers to help search the internet for possible funding/grant opportunities that may align with our mission and vision. The LDSF will work on the actual application; we just need some volunteers willing to give a few hours a month to perform internet searches and identify possible sources of funding.


 

For more information about any of the opportunities or to volunteer your time and skills, please email us at This email address is being protected from spambots. You need JavaScript enabled to view it..

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