https://www.loeysdietz.org/home-1 daily 1.0 2026-08-04 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543341450279-Q6FJT1WQJBEKD9AG4UEM/LDSF_Lights_Banner.jpg Home https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543622000452-623X34HT17EHLT0D51BG/LDSF_Blue.jpg Home https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558654763566-50G34464SN5K6WQHDQOU/LDSF_Annual-Report-Mockup.jpg Home https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1665148444552-0WLJIZ7BNBFQ6T2VUMDJ/UNADJUSTEDNONRAW_thumb_91b4.jpg Home - You are not alone in your journey with Loeys-Dietz Syndrome Read Our Stories → https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1665148948065-HVL77XT1B1NAAMVBONMF/782022-196_Web-Tint.jpg Home https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1740171061551-Y54TWSC3058PE0JA7HJX/LDS-20Year-Background.png Home https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/5b7f54eb-ee6f-4825-8448-e46661f3cb4e/2026+awareness+month+bg.png Home https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543622000452-623X34HT17EHLT0D51BG/LDSF_Blue.jpg Home https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/e2130d42-5439-491f-9194-88691a9dcf56/LDS-Horizontal-Logo-RGB-web.png Home - 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After 10 Operations, Teenager Olivia Nguyen Pays It Forward by Volunteering and Raising Awareness of Loeys-Dietz Syndrome - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/c289ef25-9f04-493a-b8b6-33b8ab849540/Olivia+Nguyen+2+%281%29.jpeg News - After 10 Operations, Teenager Olivia Nguyen Pays It Forward by Volunteering and Raising Awareness of Loeys-Dietz Syndrome - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2026/2/23/canadian-and-us-loeys-dietz-syndrome-organizations-team-up-to-help-people-living-with-rare-condition-find-community monthly 0.5 2026-02-23 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/27b17734-0d34-45e5-8ff1-821dbbaa80ae/Peoples-Perspectives-Living-with-Loeys-Dietz-Syndrome-Email-Header-1.png News - Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community - 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‘Heart Attack’ Leads to a Diagnosis of Loeys-Dietz Syndrome and Shines Light on a Family’s Medical Mysteries - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/allergies-and-loeys-dietz-syndrome monthly 0.5 2025-11-05 https://www.loeysdietz.org/news/awareness-outreach monthly 0.5 2025-04-24 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/c291ae6f-7b2b-4c2d-9da2-e13fa0b039d0/PictureMeMarfan2025-1536x568.png News - 2025 Marfan and Loeys-Dietz Awareness Months Reach 990K People - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1745532529797-SPLXDMNGJI3XMA0J0BKK/whiteheads-newsweek.png News - 2025 Marfan and Loeys-Dietz Awareness Months Reach 990K People https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1745532528059-9QPHPZNXIQ4MG1SKIWJ6/Mary-Meyers-Blue-for-LDS-768x805.jpg News - 2025 Marfan and Loeys-Dietz Awareness Months Reach 990K People https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1745532528021-TVM8OIMQDP3TW0NABT9K/stacey-stickers-225x300.jpg News - 2025 Marfan and Loeys-Dietz Awareness Months Reach 990K People https://www.loeysdietz.org/news/2025/4/3/loeys-dietz-awareness-a-caregivers-perspective monthly 0.5 2025-04-03 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1743706201520-10Q2YEMSYKPI1IETN3PZ/van+Staalduinens-47.jpeg News - Loeys-Dietz Awareness: A Caregiver’s Perspective - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/28f30ae3-64e8-4f83-87ab-cc35eb323b74/van+Staalduinens-137.jpeg News - Loeys-Dietz Awareness: A Caregiver’s Perspective - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/general-facts monthly 0.5 2025-03-19 https://www.loeysdietz.org/news/gastrointestinal-issues monthly 0.5 2025-03-19 https://www.loeysdietz.org/news/2025/3/18/living-with-loeys-dietz-syndrome-answers-to-your-top-questions monthly 0.5 2025-03-18 https://www.loeysdietz.org/news/2025/3/12/provider-to-patient-a-nurses-journey-through-loeys-dietz-syndrome-diagnosis-amp-heart-surgery monthly 0.5 2025-03-12 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/f080afa7-e38d-4bde-b0bf-9b1b69b9c565/Carrillo_RN.jpg News - Provider to Patient: A Nurse’s Journey Through Loeys-Dietz Syndrome Diagnosis & Heart Surgery - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2025/2/28/finding-purpose-in-new-places-traveling-the-world-alongside-life-with-loeys-dietz-syndrome monthly 0.5 2025-03-01 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/3e12a742-542d-46da-9ddd-e3ef8cc4d9e1/joe-new-friends-poland.jpg News - Finding Purpose in New Places: Traveling the World Alongside Life with Loeys-Dietz Syndrome - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/76c3c704-2a7d-46a4-b3e2-a80331653f97/norway-joe-1.jpg News - Finding Purpose in New Places: Traveling the World Alongside Life with Loeys-Dietz Syndrome - Make it stand out Joe’s converted sleeper car in Norway https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/934f4791-e6df-4638-a480-e0075e66799a/joe-sharks.jpg News - Finding Purpose in New Places: Traveling the World Alongside Life with Loeys-Dietz Syndrome - Make it stand out A picture from Joe’s adventure swimming with sharks https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/33687172-60a3-46da-90e3-0022cd8904f2/joe-mongolian-1024x779.jpg News - Finding Purpose in New Places: Traveling the World Alongside Life with Loeys-Dietz Syndrome - Make it stand out Joe and his wife, Heather, on a desert adventure https://www.loeysdietz.org/news/2025/2/26/help-amp-resource-center-faqs-top-5-questions-answered monthly 0.5 2025-02-26 https://www.loeysdietz.org/news/recent-symposiums-deepen-connections-knowledge monthly 0.5 2025-02-26 https://www.loeysdietz.org/news/proclaim-lds-awareness-month monthly 0.5 2025-11-05 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/164d5151-b150-49c1-a256-20e81495c154/Bay+County+Proclamation.jpg News - Proclaim March Loeys-Dietz Awareness Month in Your Community - Make it stand out Photo of Mazzy Sass (in orange) advocating for February to be proclaimed Marfan Awareness Month in Nassau County. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1740579703840-YGZFM7A9TTDUJF2UB9NA/Screenshot+2025-02-26+091013.png News - 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Camp Victory 2024 Brings Smiles https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1733413849887-EMZLQ4DBO2BDZJ0DW7ED/IMG_4884.jpg News - Camp Victory 2024 Brings Smiles https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1733413850310-5CBFUMCBN70JY0AB7JTH/IMG_4947.jpg News - Camp Victory 2024 Brings Smiles https://www.loeysdietz.org/news/2024/12/5/lineman-loses-life-to-misdiagnosed-aortic-dissection-saves-family-members monthly 0.5 2024-12-05 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/f8422a77-f5e0-4868-8c21-a62d43352f3f/derrick-werner-2048x1455.jpg News - Lineman Loses Life to Misdiagnosed Aortic Dissection, Saves Family Members - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2024/09/07/the-marfan-foundation-announces-alignment-with-global-think-aorta-campaign-to-amplify-key-life-saving-messages-starting-with-aortic-dissection-awareness-week-2024-9-19-9-26 monthly 0.5 2024-09-12 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/4ddf9168-9da4-4da3-a25f-a25ea545daca/Aortic-Dissection-Week-Header-1.png News - Foundation announces alignment with global Think Aorta campaign to amplify key life-saving messages, starting with Aortic Dissection Awareness Week 2024 (9/19 – 9/26) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2024/09/01/foundation-present-first-ever-london-symposium-living-better-with-marfan-loeys-dietz-veds monthly 0.5 2024-09-12 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1726152191168-XXH9WAEJ24MIDH94NE29/london-1-2048x634.jpg News - Foundation presents first-ever London Symposium: Living Better with Marfan, Loeys-Dietz, & VEDS - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1726151951308-82TLX39O57S5FYOHHLQV/london-carolin-1536x1152.jpg News - Foundation presents first-ever London Symposium: Living Better with Marfan, Loeys-Dietz, & VEDS https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1726152019587-S46CQFIF89BTJ6II1CQJ/gareth-owen-2.jpg News - Foundation presents first-ever London Symposium: Living Better with Marfan, Loeys-Dietz, & VEDS https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1726151951246-SHMYQKI5D95Y1ZU51BS7/annabelles-london.jpg News - Foundation presents first-ever London Symposium: Living Better with Marfan, Loeys-Dietz, & VEDS https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1726152019840-XM65YL4AEI11O1BAZMK1/london-2-1152x1536.jpg News - Foundation presents first-ever London Symposium: Living Better with Marfan, Loeys-Dietz, & VEDS https://www.loeysdietz.org/news/2024/08/31/tromsoaorta-2024-convenes-scientists-sparks-hope monthly 0.5 2024-09-12 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1726151594982-YTDA7KAT0T0EIS1KUCS2/IMG_3553-1536x1152.jpg News - TromsoAorta 2024 Convenes Scientists, Sparks Hop https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1726151594947-0QZ906UKZ7HYZ3TWNQVU/IMG_3554-1536x1152.jpg News - TromsoAorta 2024 Convenes Scientists, Sparks Hop https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1726151595901-UCKI00X5G62F13URJK15/IMG_3645-1536x1152.jpg News - 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2024 Community-Curated Fashion Guide Released - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2024/8/1/welcome-nurse-stephanie monthly 0.5 2024-09-12 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/3e0f78cf-24d8-4d76-be7d-623f6417e1e6/Quick-Hits-Board-Edition-July-2024-002-1.jpg News - Welcome Nurse Stephanie - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2024/8/15/2024-global-virtual-conference-recap monthly 0.5 2024-09-12 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/34c813d3-e0ae-4e9b-aa7e-ab95d408246e/St.-Louis-Collages-2024-2.png News - 2024 Global Virtual Conference Recap - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2024/7/29/2024-cme-symposium-for-physicians-coming-to-puerto-rico-in-october monthly 0.5 2024-09-12 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/5a60f3d5-1222-4c0e-968a-b4ac62834405/CME-Puerto-Rico-820x410-1-2048x1024.jpg News - 2024 CME Symposium for Physicians Coming to Puerto Rico in October - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/finding-purpose-after-loss-parents-mission-to-save-others monthly 0.5 2024-09-12 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/dbdcaa70-5843-433e-bd29-5e671343867f/Family+Photo.jpg News - Finding Purpose After Loss: Parents’ Mission to Save Others - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/96281d62-75fb-43e0-ac07-2489c8431b43/Color+Guard.jpg News - Finding Purpose After Loss: Parents’ Mission to Save Others - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2024/06/18/global-virtual-conference-2024-kicks-off monthly 0.5 2024-06-21 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/2a6449d7-843d-4fc9-a735-f7fe074ad703/donato-2048x1536.jpg News - Global Virtual Conference 2024 Kicks Off - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/70f42bc3-3ade-48da-bd3e-c846504441f5/flint-1536x1152.jpg News - Global Virtual Conference 2024 Kicks Off - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/4ef5df7d-73e4-41ec-a228-764355c4f28c/harper-1536x1152.jpg News - Global Virtual Conference 2024 Kicks Off - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/8287d15a-1450-4952-a256-32d64aad6148/coros-1-1536x1152.jpg News - Global Virtual Conference 2024 Kicks Off - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/18fa4c7c-8149-4c7d-886c-c67c55e1dd7f/rivera-1536x1152.jpg News - Global Virtual Conference 2024 Kicks Off - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2024/06/13/it-makes-us-part-of-something-global-virtual-conference-deepens-connections-knowledge monthly 0.5 2024-06-21 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/5c0bae2b-e9af-4f5f-86f1-972ee88bf27f/marta2.jpg News - “It Makes Us Part of Something.” Global Virtual Conference Deepens Connections & Knowledge - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/9645c184-89a1-4ee2-b325-290841daeaa9/MARTA.jpg News - “It Makes Us Part of Something.” Global Virtual Conference Deepens Connections & Knowledge - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/why-we-walk-greater-bostons-damaa-family monthly 0.5 2024-06-21 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/0146a178-c183-4f87-91fe-bdbd5f0324ac/Screenshot-2024-05-22-213342.png News - Why We Walk – Greater Boston’s Damaa Family - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/7749ca52-355c-4f15-8cc6-d8de0a96b631/damaa2.png News - Why We Walk – Greater Boston’s Damaa Family - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1ae82037-5012-4815-bbf0-ecdc79163865/7122023-445-1024x1536.jpg News - Why We Walk – Greater Boston’s Damaa Family - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/d3dd195a-220b-41a2-97fa-d802f71a5ee9/Screenshot-2024-05-22-213800.png News - Why We Walk – Greater Boston’s Damaa Family - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2024/05/02/mental-health-awareness-month-gratitude-self-care-calendar-from-the-marfan-foundation monthly 0.5 2024-06-21 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/0d950ae4-d37c-41ea-933a-d501bfe87c9f/Month-of-Self-Care-Gratitude-1.png News - A May of Self-Care & Thanks During Mental Health Awareness Month 2024 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2024/1/22/dont-miss-upcoming-foundation-events-save-the-dates monthly 0.5 2024-06-21 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/03275855-6491-4cea-b5bf-593415a4bc22/walk-tee-braverman-3.jpg News - Don’t Miss Upcoming Foundation Events: Save the Dates! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/7490de09-192b-4845-847d-16b0a2189dba/IMG_5123-2-1024x741.jpg News - Don’t Miss Upcoming Foundation Events: Save the Dates! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/223a0057-5cc4-4bc3-a081-acedfaa5ee92/IMG_3474-2-1024x831.jpg News - Don’t Miss Upcoming Foundation Events: Save the Dates! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2023/11/27/a1o8q7obsw017qtu02djdkr2et3cqg monthly 0.5 2024-06-21 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/cbb6f59c-7806-4c12-8cda-45f7989aec6c/hike.jpg News - Hope for a Better Future - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2023/11/27/here-for-a-reason monthly 0.5 2024-06-21 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1701122226588-YJ254YKP61V30R9CCQX7/Screenshot+2023-11-03+122801.png News - Here for a Reason https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1701122229277-700BVL9Q0YBI1IUGUWZ5/Screenshot+2023-11-03+122836.png News - Here for a Reason https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1701122226603-1KKCGLWOD8RFV0P81K6T/Screenshot+2023-11-03+122616.png News - Here for a Reason https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1701122229388-OI2G39ZTS058YBCQ3YZK/Screenshot+2023-11-03+122901.png News - Here for a Reason https://www.loeysdietz.org/news/2023/11/27/family-camp monthly 0.5 2024-03-28 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1701121371411-HXJUGLDXXYI8KIGC2NQ8/IMG_9720.jpg News - Family Camp https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1701121368646-U25AZ26ESG9WFV9KF6AG/IMG_9724.jpg News - Family Camp https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1701121372136-T7ATNMH7PF4632Q1YTUU/IMG_3491.jpeg News - Family Camp https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1701121419680-9OQPFVX4P082LC4QK06C/IMG_2840.png News - Family Camp https://www.loeysdietz.org/news/2023/11/20/foundation-announces-500000-in-new-research-grants monthly 0.5 2024-01-22 https://www.loeysdietz.org/news/2023/11/1/new-director-announced-for-loeys-dietz-syndrome-foundation monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/a05d813e-fbad-4be0-a6fe-091a91f11587/Welcome-to-the-team.png News - New Director Announced for Loeys-Dietz Syndrome Foundation - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2023/9/11/for-healthcare-providers-watch-amp-share-3-things-every-ed-pro-should-know-about-aortic-emergencies monthly 0.5 2024-01-22 https://www.loeysdietz.org/news/2023/7/25/announcing-atlanta-conference-2025-virtual-global-conference-2024 monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/69a17c6d-d3f0-4915-bc83-0ea6e681969a/Bert-Medina-1-1024x683.jpg News - Announcing Atlanta Conference 2025, Virtual Global Conference 2024 - Make it stand out Bert Medina, Chair https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/75e7e77a-2df4-4929-aca1-ce86bd4cf5d5/MichaelWeamer_2023HLC_003-2-1-1024x683.jpg News - Announcing Atlanta Conference 2025, Virtual Global Conference 2024 - Make it stand out Michael L. Weamer, President & CEO https://www.loeysdietz.org/news/2023/6/13/onetest monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/d9802e47-8409-4ad6-9413-8af351f24ec5/jessefam.jpg News - One Test - Make it stand out Jesse and his wife, Ashleigh, live in British Columbia with their daughter, Sophia. Jesse’s family has experienced many losses due to aortic dissection and Loeys-Dietz syndrome. Through Loeys-Dietz awareness, Jesse and Sophie, who both share the SMAD3 gene mutation, will have appropriate monitoring and treatment for the condition. https://www.loeysdietz.org/news/2022/12/14/the-foundation-announces-largest-research-grant-in-its-history monthly 0.5 2024-01-22 https://www.loeysdietz.org/news/2022/11/28/redefiningnormal monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/4497a20a-2645-4c33-aa9e-3c11e4286094/Glen11.jpeg News - Redefining Normal - Make it stand out Glenn and his father and mother in 2005 in Canterbury, U.K. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/98ba283c-edb2-4a1e-9cc7-c50a5fa3f706/Glensmother.jpeg News - Redefining Normal - Make it stand out “My late mum two years before her passing with the naughty sense of cheeky humour we all loved.” https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/a171b323-f847-4bdc-9fea-26222967d4e4/glenandalan.jpeg News - Redefining Normal - Make it stand out Allan and Glenn in Amalfi, Italy 2 years before Allan’s passing. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/02032dba-0ea9-4077-a316-17de3afa2ee6/Glenandallen.jpeg News - Redefining Normal - Make it stand out Glenn and Allan in Umbria, Italy a week before his passing. https://www.loeysdietz.org/news/2022/8/11/difficultbutneverimpossible monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/4fbf3931-3c8c-4e74-af7f-f9c4ac757cb8/Screen+Shot+2022-11-21+at+2.03.47+PM.png News - Difficult But Never Impossible - Make it stand out Kayley was born a year before Loeys-Dietz syndrome was named and was diagnosed at age 9 after emergency heart surgery. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/92f480da-bfec-4b58-aacc-e3c36d14826d/Screen+Shot+2022-11-21+at+2.04.08+PM.png News - Difficult But Never Impossible - Make it stand out “My legs looked like they had been put on backward and my fingers were crooked. Of course, everyone knew something was wrong, but no one in the world knew what that meant for me, what had happened, or how to fix it.” https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/58e3af6c-7853-48f9-b9af-efde67cb5695/IMG_5975.jpg News - Difficult But Never Impossible - Make it stand out Kayley with a few of her Loeys-Dietz friends at Disneyland during the 2022 Annual Conference https://www.loeysdietz.org/news/2022/8/11/hopeforlincoln monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/312e6003-9d1a-482c-86f9-bba059adfd5f/image+%282%29.png News - Hope for Lincoln - Make it stand out Lincoln Hervatin was diagnosed with Loeys-Dietz syndrome at age 1. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/580fea3e-9590-4ecd-b3cd-62f3ad408a8e/Screen+Shot+2022-11-21+at+1.38.20+PM.png News - Hope for Lincoln - Make it stand out The Hervatin Family, Glendale, Arizona https://www.loeysdietz.org/news/2022/11/3/new-guidelines-for-the-diagnosis-and-management-of-aortic-disease-published-by-the-american-college-of-cardiology-and-american-heart-association monthly 0.5 2024-01-22 https://www.loeysdietz.org/news/2022/8/29/angiotensin-receptor-blockers-show-significant-reduction-of-aortic-root-enlargement-in-a-meta-analysis-of-trials monthly 0.5 2024-01-22 https://www.loeysdietz.org/news/2022/8/11/growththroughlds monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/4858a965-8f22-491c-b69d-a7e334b5fb67/Eddieandme.jpeg News - Growth Through Loeys-Dietz Syndrome - Make it stand out Eddie and Laura Papsun in North Carolina https://www.loeysdietz.org/news/2022/8/11/amothersdiagnosis monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/42891435-94de-42a8-ab8d-48b28579f4fd/SYJB.jpg News - A Mother’s Diagnosis - Make it stand out Stephanie Yuskis and her son, Jacob Brown in Hinsdale, Illinois https://www.loeysdietz.org/news/2022/8/11/advesarytofamily monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/9d8b4df2-b1e8-404f-b80f-beeca6889fbc/278574767_10159935055932628_6631200766105231791_n.jpg News - Loeys-Dietz: From Adversary to Part of the Family - Make it stand out Megan, Eli, and Sam Neisius at the Milwaukee Walk for Victory in 2022 https://www.loeysdietz.org/news/2022/6/10/luckyawareness monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/52418fe0-8c08-41df-a71a-8508e56ac20c/MicrosoftTeams-image+%2814%29.png News - Lucky for Awareness - Make it stand out Alicia Rasmussen was diagnosed with Loeys-Dietz syndrome after an emergency room for a Type A Aortic Dissection at age 30. https://www.loeysdietz.org/news/2022/6/10/miracleofnotgoing monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1654798486914-K72E01BDEYO9NMQVIZ5E/MicrosoftTeams-image+%2814%29.png News - The Miracle of Not Going to Medical School - Make it stand out Craig and Ceriisa Boyd. Craig was diagnosed with Loeys-Dietz syndrome after demonstrating a heart scan on himself to show his children how it worked. https://www.loeysdietz.org/news/2021/12/3/an-eagle-scouts-generosity-in-memory-of-a-friend monthly 0.5 2024-01-22 https://www.loeysdietz.org/news/2021/11/30/strongest-together monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/8bf49f0e-6b2e-4ac8-a54e-edd59b2d1d14/LDSF-2021-GT_Stronger-Together_Email-800x500px+%281%29.jpg News - Strongest Together - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/a4bc75cf-9e75-448e-91fc-876f10448356/20200505_181503%5B28%5D.jpg News - Strongest Together - Make it stand out Yulia pregnant with Livia, before either were diagnosed with LDS. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/84802a05-6e86-44c6-8ff0-c4dd685d960f/received_2665037070430080%5B34%5D.jpeg News - Strongest Together - Make it stand out Baby Livia and mom, Yulia, after surviving an aortic dissection at 38 weeks pregnant. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/852aed78-cee8-43c9-be4c-de3ee6edcd8d/20210827_163236%5B11%5D.jpg News - Strongest Together - Make it stand out Yulia’s family is Strongest TOGETHER https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/652f8cfc-6c04-4976-ac6c-1b9b12c629da/20211111_144220%5B79%5D.jpg News - Strongest Together - Make it stand out Livia is now a typically active 18-month-old. She has a team of specialists that monitor her Loeys-Dietz syndrome. https://www.loeysdietz.org/news/2021/11/30/the-maze monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/67f88cf4-5a37-4e94-bbd5-06f9353d7156/LDSF-11-30-2021-GT_Strong-Today_Email-800x500px+%281%29.jpg News - The Maze - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2021/11/18/stronger-tomorrow monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/b37306d1-7bab-4ec6-81fb-6c5451c1aa47/received_1294567857543819.jpeg News - Stronger Tomorrow - Make it stand out The Doria family first learned about Loeys-Dietz when their son, Ezra was diagnosed. Later, their daughter, Iris, and mom, Krystalynn were also diagnosed with Loeys-Dietz type 2. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/b25cd76f-c6d4-4998-ad75-1d8ae2910f0e/20191208-CO-SapphirePoint-KrystalynnClay-66.jpg News - Stronger Tomorrow - Make it stand out Iris was diagnosed at age 13 and Ezra at age 9. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/150b87ff-3462-4ca2-b57e-50b3f471381f/20210926_145800.jpg News - Stronger Tomorrow - Make it stand out While learning about LDS, the Doria family sprung into action to help other families like theirs. They partnered with the Tennessee Titans, their favorite football team, to do a ticket fundraiser to raise money for the Marfan Foundation/Loeys-Dietz Syndrome Foundation. “We even bought tickets ourselves and went to Nashville for a game (we live in Florida) and at that game alone we raised over $1,000 AND we won! I am still selling tickets for more games this season but so far we have raised $1,600! We plan on making this an annual thing and we are very excited about it,” says Krystalynn. https://www.loeysdietz.org/news/2021/11/11/strong-today monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/726eda73-59bc-41a2-aa44-8dae504b6104/Tammy+Cropped.png News - Strong Today - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/cdec3030-7678-4d88-8549-c4267c922f27/Tammydad.jpg News - Strong Today - Make it stand out Tammy as a toddler with her dad, who passed away after an aortic aneurysm at age 32. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/68a516c5-8e7d-44eb-ae0b-6d53f403f41c/Tammyicu.jpeg News - Strong Today - Make it stand out Successful aortic replacement surgery! https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/d5663229-1afb-45c5-baf7-739fa34df780/Tammy+going+home-1.jpeg News - Strong Today - Make it stand out Going home from surgery! https://www.loeysdietz.org/news/2021/10/living-well-within-the-rules monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/397f9269-46bb-4129-ae2b-496648c19e66/DSC09194.jpg News - Living Well Within the Rules - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/0fb70996-555a-4af5-805a-6d8ff6e3890c/IMG_20200827_100755.jpg News - Living Well Within the Rules - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2021/9/27/double-rare monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1632945421859-DRRHY6IUVKAOTLZYRM2C/Riley+Horizontal.jpeg News - Double Rare - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1632945340785-7FRL99MOE9VU5TIEYMPR/IMG_20210627_024436_375%5B93%5D.jpg News - Double Rare - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2021/9/8/power-couple-surges-through-connective-tissue-condition-to-help-others monthly 0.5 2024-01-22 https://www.loeysdietz.org/news/2024/1/22/the-marfan-foundation-announces-updated-research-grant-program-to-facilitate-transformational-science monthly 0.5 2024-01-22 https://www.loeysdietz.org/news/2021/5/14/nicks-journey-in-honor-of-connors-big-heart monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/29373548-574d-4603-a51a-b6232e3befb4/Metz-1.png News - Nick’s Journey in Honor of Connor’s Big Heart - Make it stand out Connor https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/829e0d95-225e-4c75-b90d-6835619b61ac/Metz.png News - Nick’s Journey in Honor of Connor’s Big Heart - Make it stand out Nick https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/f6b695aa-8218-493d-954d-77c21db3b18b/Metz-family.jpg News - 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My Daughter is My Hero https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1606141876425-J3ZE4HN6FIEHSVR6SVYT/PSX_20201026_014114.jpg News - My Daughter is My Hero https://www.loeysdietz.org/news/2020/11/23/your-questions-answered-medical-geneticist-and-genetic-testing monthly 0.5 2024-01-22 https://www.loeysdietz.org/news/2020/11/17/a-shining-light-of-hope-and-change-for-the-future monthly 0.5 2020-11-24 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1605638650858-8CYRF5LY0QI7X6XAYQF8/Brandon+Crawford_2.png News - A Shining Light of Hope and Change for the Future https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1605638648860-LAFZNNN3WDUJIEC811HA/Brandon+Crawford_3.png News - A Shining Light of Hope and Change for the Future https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1605638649406-HR4W6HDSONYBP0L5SQUN/Brandon+Crawford_4.png News - A Shining Light of Hope and Change for the Future https://www.loeysdietz.org/news/2020/11/17/remember-to-celebrate monthly 0.5 2020-11-24 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1605638164146-MJ18F7L1FN7V3TOKA6HD/image1.jpeg News - Remember to Celebrate https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1605638107928-FA6VNJ49OXGAU2IDYDVX/image-asset.png News - Remember to Celebrate https://www.loeysdietz.org/news/2020/10/30/seasons-change-and-i-have-hope monthly 0.5 2020-11-24 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1604957915849-QZIKWGDHVUMTIF6S6C6P/IMG_4331.JPG News - Seasons Change, and I Have Hope! https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1604957942890-Q2TTK9699R7Q53I7ZCC8/IMG_4332.JPG News - Seasons Change, and I Have Hope! https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1604957905982-M2E26G6NJ5HJKV3GB0QM/image-asset.jpeg News - Seasons Change, and I Have Hope! https://www.loeysdietz.org/news/2020/6/4/introducing-new-loeys-dietz-syndrome-foundation-director monthly 0.5 2024-01-22 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/0f726541-b030-43e8-8f4d-f56687b8d083/angelanewspost-1.png News - Introducing New Loeys-Dietz Syndrome Foundation Director - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/news/2020/5/20/the-marfan-foundation-and-loeys-dietz-syndrome-foundation-join-forces monthly 0.5 2024-01-22 https://www.loeysdietz.org/news/2019/12/4/every-little-bit-adds-up monthly 0.5 2019-12-04 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1575494083506-216JXUU4396TSD5EKRIT/IMG_20171114_163112.jpg News - Every Little Bit Adds Up https://www.loeysdietz.org/news/2019/12/4/an-act-of-empowerment monthly 0.5 2019-12-04 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1575493755867-HZ77IJM4F6G19X496NP3/Gavin.jpeg News - An Act of Empowerment https://www.loeysdietz.org/news/2019/5/11/i-became-a-fighter monthly 0.5 2019-06-25 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558652398046-DB0ENK8YTIFBPJ0SVB06/UNADJUSTEDNONRAW_thumb_9111.jpg News - I Became a Fighter https://www.loeysdietz.org/news/2019/5/11/our-community-is-family monthly 0.5 2019-05-23 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558652443922-OTXV0K0DBDYQGA7WF8ZH/DSC_3080-1.jpg News - Our Community is Family https://www.loeysdietz.org/news/2019/5/11/my-beautiful-wide-eyed-girl monthly 0.5 2019-06-25 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558652477978-DFL52OHWX6UQTCIEOXQZ/Carol+Cheng.png News - My Beautiful Wide-Eyed Girl https://www.loeysdietz.org/news/2019/5/11/the-founding-of-the-foundation monthly 0.5 2019-06-25 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558652509010-5DHS7KL3GGG1V7LRBHP4/UNADJUSTEDNONRAW_thumb_973e.jpg News - The Founding of the Loeys-Dietz Syndrome Foundation https://www.loeysdietz.org/news/2018/11/27/example-story-1 monthly 0.5 2019-05-23 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558652558358-5PE5QYIL8LH8WJEX44JN/image-asset.jpeg News - Care Based Upon Strong Facts https://www.loeysdietz.org/news/2015/4/8/peter-donato-my-conference-story monthly 0.5 2024-01-22 https://www.loeysdietz.org/news/category/News monthly 0.5 https://www.loeysdietz.org/news/category/Stories monthly 0.5 https://www.loeysdietz.org/news/category/Diagnosis monthly 0.5 https://www.loeysdietz.org/news/category/Research monthly 0.5 https://www.loeysdietz.org/news/category/Resources monthly 0.5 https://www.loeysdietz.org/news/category/Announcements monthly 0.5 https://www.loeysdietz.org/en/resources daily 0.75 2026-06-10 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405164110-EVYF30RKBQRDCNP3KY7I/image-asset.jpeg Resources https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405488796-1DKGE8Z6YKW4GDYEOZC5/LDSF_Pearl.jpg Resources https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405648599-XZC271DTTPN7OXM7RDZN/LDS-Icons_Research.png Resources https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/88c22343-4c06-47d0-846b-4cfa705728a6/Blog-Image-1.png Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/0ebc4805-6e83-446c-a2c7-3f966b9d513b/peds.jpg Resources - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561078890188-FE0A07HO2ZOPPA10AUMK/Emergency-Alert-Card_v1.png Resources https://www.loeysdietz.org/en/science-and-medicine daily 0.75 2026-07-20 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1553002740749-AXZ34GY4TFQ90R8MC04Q/iStock-917825314_Darkened.jpg Research https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543622000452-623X34HT17EHLT0D51BG/LDSF_Blue.jpg Research https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1643586424392-RGQ34NMH6CQ0G0DJ4L9S/LDSF_White-BG.jpg Research https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561321149427-8INS3IUDRJD718L32Z6B/Vicente+%281%29+1.jpg Research https://www.loeysdietz.org/en/medical-information daily 0.75 2026-05-19 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543346200437-Y0SDMLBRYGIY93M76P07/UNADJUSTEDNONRAW_thumb_9143.jpg About LDS https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405376883-LJKFFCKBWLUPQSUC31OI/LDSF_Pearl.jpg About LDS https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405392749-XYTSU3MDSJ6OEHFPKGY6/LDSF_Light-Blue.jpg About LDS https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405408307-82L9VYA6RS68GVPUH7KP/LDSF_Light-Blue.jpg About LDS https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405419542-QCVI335Z2GOIC2RNGPRU/LDSF_Pearl.jpg About LDS https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543622000452-623X34HT17EHLT0D51BG/LDSF_Blue.jpg About LDS https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405265237-BOWRGO6CLQ1ZPWMHVDUD/image-asset.jpeg About LDS https://www.loeysdietz.org/conferences daily 0.75 2025-03-04 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1604589072038-AAO3VJ7P77WXMNQ6G99C/LDSF_Journey-of-Hope-Website_Background_Blank.jpg Conferences https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/5d0fcbe2-6f50-4de6-892f-966d7c085e09/1200x675_v2.png Conferences - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1624571137364-Y8NZWE21I473IDSYUOS0/Marfan+Foundation_Annual+Conference_social+media3.jpg Conferences - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543625395994-XPNBFPYJGQHAX476ERE5/2018_heart_of_gold_Kasper.jpg Conferences Pictured: Chicagoland Kasper and Padilla families https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1624469734573-A0M5O2I7EOR0J65ELLAL/Marfan+Foundation_Annual+Conference_social+media3.jpg Conferences https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/554ccca8-6b2d-448c-bb4d-e0a11632802a/Conference+App+Background.png Conferences - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.loeysdietz.org/about-ldsf daily 0.75 2026-08-04 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406044068-4E7UC8SR8VSU9LZNPOLT/LDSF_Pearl.jpg About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1560868106167-UQBPPW9EY45V8H3PASZZ/DSC_3080-1.jpg About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1669818069358-RJD9GEUD4LCTKPE8I2B2/Charity-Navigator_4-Star-Logo.jpg About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1698780110927-FJJ9H93IG306NICOG13C/profile-PLATINUM2023-seal.png About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1669818069867-W99MVPE243XIFONRRL16/NHClogo.jpg About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1669818070030-WHH7RF70A3FPLESH52UK/NPTs-Best-NonProfitsTo-WorkFor2020.png About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1669818070414-1LSL55BCSSRK81XISSK5/aC-seal-horizontal-w-url.png About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/93a45756-74f4-46af-99ef-edc9bfea235f/20+Years+of+Awareness.png About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/20199312-13ae-4f56-b1c2-5cf2a442c936/Stacey-Watson_LDSF-Director.png About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/393c6721-aa4e-42b9-9918-b25fc06172e8/7.png About LDSF - Make it stand out Julie Wilson Chair Julie lives in West Virginia with her husband, Chris, and their son, Connor, who has LDS. A dedicated advocate for the Foundation and the LDS community, Julie has served in several leadership roles on the Foundation's Steering Committee. She was a member of the 2016 conference planning committee, co-chaired the 2018 conference, and joined the Board of Directors (now Steering Committee) in 2016. Julie is also deeply involved with the Pittsburgh Walk for Victory, helping to advance awareness and support for families affected by LDS. In recognition of her exceptional service and commitment, she received the Foundation's Heart of Gold Award in 2025. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/a41a62ad-be58-44f5-a53d-4210c02ee076/10.png About LDSF - Make it stand out Mary Meyers Vice Chair Mary lives in Minnesota with her husband and two children. Her daughter, Adalynn, has LDS. Mary grew up knowing she wanted to help others. After 7 years working in geriatrics and memory care, and motivated by the impact of risings costs in patient care, Mary shifted to a career in the financial industry where she has now been for 10 years. Her skills in both industries have helped her become a strong advocate for her daughter and everyone in the LDS community. Mary joined the Steering Committee in 2024. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/5b6f8888-4162-40f2-b377-1a2e087cc1cb/6.png About LDSF - Make it stand out Linda Tigges Past Chair Linda joined the board in 2018 and lives in Raleigh, North Carolina, with her husband, David, and son. Her daughter, Kayley, who had LDS, passed away in 2025. Following a distinguished legal career, she is now focused on honoring Kayley's memory through a children's book inspired by her life. She has also recently embraced the hobby of beekeeping. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/3868da2d-e533-4e57-8f8b-10b82bf1141f/4.png About LDSF - Make it stand out Feissal Damaa Feissal lives in the Greater Boston Area with his wife, Becky, and two daughters Ariele and Elina. Ariele was diagnosed with Loeys-Dietz Syndrome at age 8, and since then the Damaa family has been active in the Marfan and LDS communities. Feissal has over 20 years of experience in software engineering and a bachelor's degree in Computer Science from the University of Massachusetts. He loves to build things and hopes to use his talents to make the world a better place! https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/c155ac7b-3a00-485e-a1a3-ca10d9873f2a/9.png About LDSF - Make it stand out Peter Donato Peter was diagnosed with LDS in 5th grade and the following summer he and his family went to their first Marfan Foundation conference in Philadelphia. Since then Peter has been very involved. Currently he is the Teen Program Leader and Teen Council Co-Chair. When he isn’t volunteering you find him in his hometown of Boston, MA, hanging out with friends and family. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/7188257c-7ded-41f5-80aa-1abc4873fc69/3.png About LDSF - Make it stand out Kathleen Dreissen Kathleen Dreissen lives with her husband, Sam; their sons, Liam and Nolan; and an anxious Goldendoodle. An educator for nearly two decades, Kathleen currently serves as a Kindergarten through fifth-grade dual language Mathematics Interventionist and co-leads her district’s mentoring and induction program. Her connection to the community began when Nolan was diagnosed at age three. Since then, the family has actively participated in foundation events, and Kathleen regularly attends the LDS Connect Support Group. In 2025, her husband’s outreach to the mayor of Saint Charles, IL, led to March being proclaimed LDS Awareness Month, allowing the family to share Nolan’s journey at a city council meeting. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/c26e5901-05d0-4c47-ad34-43e10be9f605/5.png About LDSF - Make it stand out Bennett Kitchens Bennett lives in Chapel Hill, North Carolina, where she is a senior at the University of North Carolina at Chapel Hill studying biology on the Pre-PA track. She and her father, Freddie, were diagnosed with LDS (Type 3/SMAD3) in 2018. Bennett attended high school in Cleveland, Ohio, where she later worked as a student researcher on connective tissue disorders for Dr. Eric Roselli at the Cleveland Clinic. She currently works at SECU Family House at UNC Hospitals, (a hospital hospitality house similar to Ronald McDonald House) alongside classes. Bennett has served as Community Outreach Chair for LDS Walk for Victory, and she and her parents have participated in the walk every year since her diagnosis. She has a younger sister, Camden, and four dogs, Friday, Coffee Bean, Monday, and Brown Potato. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/690d2a65-52d2-4469-821b-2b3071602898/12.png About LDSF - Make it stand out Gretchen (Oswald) MacCarrick Past President and Co-Founder Gretchen lives in Towson, Maryland, with her husband, Jacob. She is a genetic counselor at Johns Hopkins University in Baltimore, where she specializes in caring for individuals and families affected by Loeys-Dietz syndrome and other connective tissue disorders. She holds a bachelor's degree in biology and has dedicated her career to advancing education, research, and compassionate care for those living with genetic conditions. As a co-founder of the Loeys-Dietz Syndrome Foundation, Gretchen has been instrumental in shaping the organization's mission and growth. She served as the Foundation's president and has been a member of the Board of Directors since its founding in 2007, providing nearly two decades of leadership and unwavering commitment to the LDS community. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/0a7c9f7f-618c-4a25-b8a9-28982d28fb49/8.png About LDSF - Make it stand out Heide Padilla Heide Padilla lives in Chicago, Illinois, with her husband, Germaine, and their four sons. Her son, Noah, has LDS. Heide is an elementary school teacher and has worked in the Chicago Public Schools for more than 16 years. She holds a bachelor's degree in Early Childhood Education and a master's degree in Curriculum and Instruction. A passionate advocate for the LDS Foundation, Heide has been an active fundraiser and voice for the LDS community for many years. She has also served in several Foundation leadership roles. Heide and her family have been integral to the success of the Chicago Walk for Victory, serving as top fundraisers and local LDS community chairs. In recognition of their extraordinary dedication and service, the Padilla family received the Foundation's Heart of Gold Award in 2023. Heide joined the Board of Directors (now Steering Committee) in 2017. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1744ca5c-fdf5-4c89-972b-af73df0b97ff/11.png About LDSF - Make it stand out Carlos Morales Carlos Morales lives in St. Louis, Missouri, with his wife, Stephanie, and their daughter, Kylie. Their child, Ash (Kaitlyn Rose), passed away in September 2023 at the age of 14. After Ash's passing, their family learned that Ash had undiagnosed Loeys-Dietz syndrome, which led Carlos to undergo genetic testing. He was subsequently diagnosed with LDS Type 2. In honor of Ash's life, Carlos and his family have become passionate advocates for LDS awareness. They have been instrumental in the success of the St. Louis Walk for Victory, serving as top fundraisers and local LDS community chairs while helping to educate others and support families affected by LDS. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/76546c03-d9d0-4101-aad2-8ca2ba0f1451/13.png About LDSF - Make it stand out Bridget Porter-Metz Bridget became involved with the LDS community following the loss of her 13-year-old son, Connor. Since then, she has been a tireless advocate for education and awareness of Loeys-Dietz syndrome and aortic disease. A respected leader in Northern California, Bridget has helped grow the Northern California Walk for Victory into one of the Foundation's most successful events, leading record-breaking fundraising efforts alongside her community. She is also piloting an educational program for nursing students at the University of San Francisco to increase awareness of LDS, Marfan syndrome, and related connective tissue disorders. In recognition of her extraordinary leadership and dedication, Bridget received the Foundation's Heart of Gold Award in 2022. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/fc449bb7-53b5-4122-8b98-63343bba6bfc/1.png About LDSF - Make it stand out Jordan Ramsey Jordan is an Industrial Engineer in healthcare living in Ann Arbor, MI working on patient safety, process improvement, and innovation. Jordan’s sister and only sibling, Erin, was diagnosed with Loeys-Dietz Syndrome and passed away in 2008 when she was 16 years old and Jordan was 14 at the time. Since then, Jordan has been involved with the LDSF by volunteering at biannual conferences, raising awareness through her writing and helping with fundraising events, and volunteering in the community through baking cakes for kids with life-threatening illnesses and volunteering as a camp counselor at a camp for grieving children. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/f6c80686-69d3-4799-9d05-dc60ff57fb7c/2.png About LDSF - Make it stand out Diane Rich, PT, DPT Diane lives in La Porte, Indiana, and was diagnosed with LDS in 2023. She holds a bachelor’s degree in pre-medical studies, a doctorate in physical therapy, and is a credentialed clinical instructor. She divides her professional time between providing patient-centered care and working as the director of human resources at her family’s filter business. Diane enjoys volunteering with Emory DPT’s Alumni Mentorship Program, supporting the online LDS community, and contributing to research efforts that improve physical rehabilitation outcomes for people with connective tissue disorders. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1557620181213-0BE348GEB5DPB39L7RTH/LDSF_BOD-Photos_Dawn.png About LDSF Dawn G. Reiner Past President Dawn lives in Park City, UT with her husband, Andrew, and two children. Their daughter, River, has LDS. Dawn recently servesdon The Marfan Foundation Board, chaired the Marfan Foundation Mental Health Taskforce and is currently the Vice President of Marketing for her family owned product development company. She holds an undergraduate degree in marketing and graduate degree in education. She joined the LDS Board in 2014, chaired the 2016 conference and co-chaired the 2018 conference. https://www.loeysdietz.org/zh/medical-information daily 0.75 2020-07-01 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543346200437-Y0SDMLBRYGIY93M76P07/UNADJUSTEDNONRAW_thumb_9143.jpg LDS - 什么叫LDS？ https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405419542-QCVI335Z2GOIC2RNGPRU/LDSF_Pearl.jpg LDS - 什么叫LDS？ https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405408307-82L9VYA6RS68GVPUH7KP/LDSF_Light-Blue.jpg LDS - 什么叫LDS？ https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405392749-XYTSU3MDSJ6OEHFPKGY6/LDSF_Light-Blue.jpg LDS - 什么叫LDS？ https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405376883-LJKFFCKBWLUPQSUC31OI/LDSF_Pearl.jpg LDS - 什么叫LDS？ https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543622000452-623X34HT17EHLT0D51BG/LDSF_Blue.jpg LDS - 什么叫LDS？ https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405265237-BOWRGO6CLQ1ZPWMHVDUD/image-asset.jpeg LDS - 什么叫LDS？ https://www.loeysdietz.org/zh/about-ldsf daily 0.75 2020-07-01 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1560868106167-UQBPPW9EY45V8H3PASZZ/DSC_3080-1.jpg ZH - About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406044068-4E7UC8SR8VSU9LZNPOLT/LDSF_Pearl.jpg ZH - About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1555533936812-CFKEZW3LJ8OCMCXIIGXJ/LDSF_Tagline-Graphic.jpg ZH - About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1557620181213-0BE348GEB5DPB39L7RTH/LDSF_BOD-Photos_Dawn.png ZH - About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1555533751619-QT4IYWL6YMPH2TJBELQN/LDSF_BOD-Photos_Gretchen.png ZH - About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1557620123037-2EBO0A4526BSVFGZB65G/LDSF_BOD-Photos_Julie.png ZH - About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558542578809-2KUWL28H2VGEMMP7F394/LDSF_BOD-Photos_Sue.png ZH - About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558542527517-ZGSN05IHOX6CC77PTULO/LDSF_BOD-Photos_Heide.png ZH - About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558542516865-7FCOKC6SVRR1XHRQQIU0/LDSF_BOD-Photos_Jennie.png ZH - About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1555533828146-RU7E0VVMWYH25TI5UMPN/LDSF_BOD-Photos_Linda-Tigges.png ZH - About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558542858747-V4K9EH6QSR0ATAXESN3K/LDSF_BOD-Photos_Kristy.png ZH - About LDSF https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558542691204-WBYHGRPAMVBOMY3MCKK3/LDSF_BOD-Photos_Lauren.png ZH - About LDSF https://www.loeysdietz.org/zh/resources daily 0.75 2020-07-01 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405164110-EVYF30RKBQRDCNP3KY7I/image-asset.jpeg ZH - Resources https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405488796-1DKGE8Z6YKW4GDYEOZC5/LDSF_Pearl.jpg ZH - Resources https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543622000452-623X34HT17EHLT0D51BG/LDSF_Blue.jpg ZH - Resources https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551405648599-XZC271DTTPN7OXM7RDZN/LDS-Icons_Research.png ZH - Resources https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561078890188-FE0A07HO2ZOPPA10AUMK/Emergency-Alert-Card_v1.png ZH - Resources https://www.loeysdietz.org/zh/research daily 0.75 2020-07-01 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1553002740749-AXZ34GY4TFQ90R8MC04Q/iStock-917825314_Darkened.jpg ZH - Research https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406055164-BRDEXM8SMVA70840C3QX/LDSF_Light-Blue.jpg ZH - Research https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543622000452-623X34HT17EHLT0D51BG/LDSF_Blue.jpg ZH - Research https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561321149427-8INS3IUDRJD718L32Z6B/Vicente+%281%29+1.jpg ZH - Research https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406093370-5050IU2U6XC6K2EMAVYC/PMP_Image+Placeholder.jpg ZH - Research https://www.loeysdietz.org/zh/homepage daily 0.75 2020-07-01 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1573741140818-G10Q5OOSIY0I2FP1UDJ1/LDSF_Light-Gray.jpg ZH - HOMEPAGE https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543341450279-Q6FJT1WQJBEKD9AG4UEM/LDSF_Lights_Banner.jpg ZH - HOMEPAGE https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558654763566-50G34464SN5K6WQHDQOU/LDSF_Annual-Report-Mockup.jpg ZH - HOMEPAGE https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543622000452-623X34HT17EHLT0D51BG/LDSF_Blue.jpg ZH - HOMEPAGE https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1573740382427-IHA6XX0G2K9U19Y1TNPB/Giving+Tuesday_LDSF+Colors-01.png ZH - HOMEPAGE https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1568243401096-YGX8FMHC7LQR47FI97U7/LDSF_2020-Conference-Theme_Final.jpg ZH - HOMEPAGE https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551403354479-B5QJOKHB5FR5ODEM229O/LDS-Icons_Volunteer.png ZH - HOMEPAGE https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551403373054-TUOUIDIKX317KOWPE02Q/LDS-Icons_Story.png ZH - HOMEPAGE https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551403398344-B2TIAGMEMTYSNGR1WHIB/LDS-Icons_Donations.png ZH - HOMEPAGE https://www.loeysdietz.org/zh/partners daily 0.75 2019-12-01 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561321300284-PR6TSRCJOUD4OMR8LE3F/research-photo_Dietz_Darkened.jpg Our Partners https://www.loeysdietz.org/zh/stories daily 0.75 2020-07-01 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406212778-01QV56KE8WMU5KKHLRXV/LDSF_Light-Blue.jpg ZH - Stories https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543622000452-623X34HT17EHLT0D51BG/LDSF_Blue.jpg ZH - Stories https://www.loeysdietz.org/zh/get-involved daily 0.75 2020-07-01 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406825881-9BHAJH77JVNM2DTJ4ZBH/1ykufHKRRdedRogTQNNgJA_thumb_8f53.jpg Get Involved https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406832599-ELZSXIYKKQESIBBR0CEG/19anqn8cTAOy61%2B%2BL%2BtO%2Bw_thumb_9165.jpg Get Involved https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406836701-E9KLBPXRKM06R7VGEAJJ/UNADJUSTEDNONRAW_thumb_91a4.jpg Get Involved https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406842656-U9IZGZ5TKHSR6PKYLYZL/UNADJUSTEDNONRAW_thumb_91b1.jpg Get Involved https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406848984-QLGOYA2SRT3JU1O3763E/UNADJUSTEDNONRAW_thumb_911f.jpg Get Involved https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406911258-IHK1UZXQXTVICMGPAN9T/UNADJUSTEDNONRAW_thumb_9140.jpg Get Involved https://www.loeysdietz.org/get-involved daily 0.75 2022-12-02 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1629221829896-0MKHIVVC0OAIPAK9AN7W/3U4A0647_Web.jpg Get Involved https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558533255305-KFBZI4992PMMT4R2NOWV/LDSF_Light-Blue.jpg Get Involved https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/86052195-6d3d-4420-ad3f-b3ebf6168b50/TeamLDSNCWalk2021.jpeg Get Involved https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1629217995806-3C8ZUKW50QK23CCQSN1X/pexels-anna-shvets-3727464_Web.jpg Get Involved https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543338009768-VRJ8P0HXVRB1HQILHXQY/UNADJUSTEDNONRAW_thumb_91b4.jpg Get Involved https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1629215932736-2LXPW8WMLC94CRVEXNV5/pexels-kaboompics-com-6168_Facebook-Fundraising-Mockup.jpg Get Involved - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1629215663454-WHIGCU18UCNP1W0HYCEC/3U4A0833_Square.jpg Get Involved - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1629217351990-PUXEF0JWV5JGQUXCFEYL/Marfan-Syndrome-Study-Samaan-Lab-7_Cropped.jpg Get Involved - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1629221544067-5DPEOJYH3DK9ENA62484/3U4A0600_Retouched.jpg Get Involved - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1629221344206-ABBXFHY5A32IH8CJ8N7N/65914797_2508309089200988_7108167125373550592_n_Retouched.jpg Get Involved - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1629221396927-SQSXOYHZZAFDFY8ZNUIQ/c.bonfireassets.jpg Get Involved - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/a9e1f902-d047-49f9-a484-c7d0eef04f3e/5242022-24-2048x1366.jpg Get Involved - Special Events The Marfan Foundation hosts many fundraising events from coast to coast throughout the year to raise awareness of Loeys-Dietz syndrome and to raise critical funds to support our work. Our events include formal Heartworks Galas, family-friendly Walks for Victory, online cocktail hours, and local events arranged by volunteer leaders. Each and every event is important and helps us further our mission. https://www.loeysdietz.org/webinars daily 0.75 2025-02-20 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1637017641367-QNKU2VYUFG7AO6NWXZVK/Marfan_Webinars_1.png Webinars https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1615481608453-ALA3SEF4AGXPZQRV7Q8Q/LDSF_STD-2021_Virtual-Annual-Conference-BG_white.jpg Webinars https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1615481608453-ALA3SEF4AGXPZQRV7Q8Q/LDSF_STD-2021_Virtual-Annual-Conference-BG_white.jpg Webinars https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/cd09cf33-6368-4ce1-8e50-76dd7fb91cd9/unsplash-image-niUkImZcSP8.jpg Webinars https://www.loeysdietz.org/research-articles daily 0.75 2024-02-16 https://www.loeysdietz.org/research-articles/maternal-and-fetal-outcomes-in-pregnancies-complicated-by-the-inherited-aortopathy-loeysdietz-syndrome-gz7kt monthly 0.5 2024-03-08 https://www.loeysdietz.org/research-articles/2024/2/16/thoracolumbar-scoliosis-in-pediatric-patients-with-loeys-dietz-syndrome-a-case-series monthly 0.5 2024-02-16 https://www.loeysdietz.org/research-articles/2023/2/27/adjustment-to-disease-and-quality-of-life-in-people-with-vascular-ehlers-danlos-and-loeys-dietz-syndromes-a-mixed-method-study monthly 0.5 2024-02-16 https://www.loeysdietz.org/research-articles/pain-and-fatigue-in-adults-with-lds-and-veds monthly 0.5 2024-03-01 https://www.loeysdietz.org/research-articles/2022/5/clinical-features-and-complications-of-loeys-dietz-syndrome-a-systematic-review monthly 0.5 2024-02-16 https://www.loeysdietz.org/research-articles/2022/3/17/loeys-dietz-syndrome-case-report-and-review-of-the-literature monthly 0.5 2026-02-25 https://www.loeysdietz.org/research-articles/2022/3/17/the-mental-health-impact-of-aortic-dissection monthly 0.5 2026-02-25 https://www.loeysdietz.org/research-articles/2022/2/3/the-growing-spine-in-marfan-and-loeysdietz-syndromes monthly 0.5 2024-02-16 https://www.loeysdietz.org/research-articles/2022/1/neurovascular-abnormalities-in-patients-with-loeys-dietz-syndrome-type-iii monthly 0.5 2026-02-25 https://www.loeysdietz.org/research-articles/2021/11/orthopaedic-management-of-loeys-dietz-syndrome-a-systematic-review monthly 0.5 2026-02-25 https://www.loeysdietz.org/research-articles/2021/09/24/hipsc-modeling-of-lineage-specific-smooth-muscle-cell-defects-caused-by-tgfbr1a230t-variant-and-its-therapeutic-implications-for-loeys-dietz-syndrome monthly 0.5 2022-02-20 https://www.loeysdietz.org/research-articles/2021/07/23/toward-precision-medicine-in-vascular-connective-tissue-disorders monthly 0.5 2026-02-25 https://www.loeysdietz.org/research-articles/2021/3/23/aortic-flow-dynamics-and-stiffness-in-loeysdietz-syndrome-patients-a-comparison-with-healthy-volunteers-and-marfan-syndrome-patients monthly 0.5 2026-02-25 https://www.loeysdietz.org/research-articles/2021/3/19/audiologic-and-otologic-clinical-manifestations-of-loeys-dietz-syndrome-a-heritable-connective-tissue-disorder monthly 0.5 2026-02-25 https://www.loeysdietz.org/research-articles/2021/1/27/insights-on-the-pathogenesis-of-aneurysm-through-the-study-of-hereditary-aortopathies monthly 0.5 2026-02-25 https://www.loeysdietz.org/research-articles/maternal-and-fetal-outcomes-in-pregnancies-complicated-by-the-inherited-aortopathy-loeysdietz-syndrome monthly 0.5 2024-02-16 https://www.loeysdietz.org/research-articles/2024/2/16/preventing-a-catastrophe-increasing-awareness-of-loeys-dietz-syndrome monthly 0.5 2024-02-16 https://www.loeysdietz.org/research-articles/2018/parental-reported-neurodevelopmental-issues-in-loeys-dietz-syndrome monthly 0.5 2026-02-25 https://www.loeysdietz.org/research-articles/2014/1/29/tgf-receptor-mutations-impose-a-strong-predisposition-for-human-allergic-disease monthly 0.5 2026-02-25 https://www.loeysdietz.org/research-articles/2013/10/dural-ectasia-in-loeysdietz-syndrome monthly 0.5 2024-02-16 https://www.loeysdietz.org/research-articles/2013/increased-fracture-risk-and-low-bone-mineral-density-in-patients-with-loeys-dietz-syndrome monthly 0.5 2026-02-25 https://www.loeysdietz.org/research-articles/category/Research monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Pediatrics monthly 0.5 https://www.loeysdietz.org/research-articles/tag/RNA monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Spine monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Vascular+Biology monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Aneurysm monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Audiologic monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Growth+Factor+Beta monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Mental+Health monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Aortic+Root monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Aorta+aneurysms+osteoarthritis+syndrome monthly 0.5 https://www.loeysdietz.org/research-articles/tag/obstetrics+%26+gynecology monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Clinical+features monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Receptors monthly 0.5 https://www.loeysdietz.org/research-articles/tag/fatigue monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Thoracolumbar+Scoliosis monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Scoliosis monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Aorta monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Genetics monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Anxiety monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Hypertelorism monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Precision+Medicine monthly 0.5 https://www.loeysdietz.org/research-articles/tag/arterial+tortuosity monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Smooth+Muscle+Cell monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Neurovascular monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Thoracic+Aortic+Aneurysm monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Fatigue monthly 0.5 https://www.loeysdietz.org/research-articles/tag/sleep+problems monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Aortic+Dissection monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Practice+Guidelines monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Familial+Thoracic+Aortic+Aneurysm monthly 0.5 https://www.loeysdietz.org/research-articles/tag/reproductive+health monthly 0.5 https://www.loeysdietz.org/research-articles/tag/ectasia monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Quality+of+Life monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Orthopaedic monthly 0.5 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https://www.loeysdietz.org/research-articles/tag/Bone+Density monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Bifid+uvula monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Depression monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Loeys%E2%80%93Dietz+syndrome monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Neurovascular+abnormalities monthly 0.5 https://www.loeysdietz.org/research-articles/tag/High+Arched+Palate monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Teens monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Sleep+Health monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Aortic+Stiffness monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Connective+Tissue+Disorders monthly 0.5 https://www.loeysdietz.org/research-articles/tag/Spinal+Deformity monthly 0.5 https://www.loeysdietz.org/welcome-to-ldsf daily 0.75 2025-03-18 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1636493776053-U6V1FZKWANZXGHRIH2EU/2021-LDSF-GT-Campaign_Web-Background_1.jpg Welcome to the Loeys-Dietz Syndrome Foundation https://www.loeysdietz.org/awareness-month daily 0.75 2026-03-20 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/4f51de56-61be-478c-8128-cd467607f5ec/LDS+logo+for+swapcard.png 2026 Loeys-Dietz Awareness Month https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/5b7f54eb-ee6f-4825-8448-e46661f3cb4e/2026+awareness+month+bg.png 2026 Loeys-Dietz Awareness Month https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/5b7f54eb-ee6f-4825-8448-e46661f3cb4e/2026+awareness+month+bg.png 2026 Loeys-Dietz Awareness Month https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/344b82ac-6667-4b03-95c4-02217f84da39/Transparent+BG+for+website.png 2026 Loeys-Dietz Awareness Month - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/43a589c6-fbd4-4625-86ce-b86a2c6dd7f5/flag.gif 2026 Loeys-Dietz Awareness Month - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1740583602079-S3ILUSF0XWFJZ8QGE7GY/Screenshot+2025-02-26+091013.png 2026 Loeys-Dietz Awareness Month https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1740583632081-D8XUNTL29TK2YPLQRYO0/stlouis+proclamation.jpg 2026 Loeys-Dietz Awareness Month https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1740763010355-FAZLIZIZRDUJID3V8G1L/Screenshot+2025-02-28+121539.png 2026 Loeys-Dietz Awareness Month https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1744123312591-0TR717NCC8H5QUJRQ0AC/Screenshot+2025-04-03+140439.png 2026 Loeys-Dietz Awareness Month https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1744123480811-PEPQ034GN4QRWO7R15L1/3577206836637540132.jpg 2026 Loeys-Dietz Awareness Month https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1aaf0f1d-2da9-453f-8d40-aca70cf372c8/customer.gif 2026 Loeys-Dietz Awareness Month - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/e6c17cf3-7b5d-422c-b910-2f27a8f7a25b/idea.gif 2026 Loeys-Dietz Awareness Month - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/b116488d-5a2f-4b28-a738-966c6fa8facd/love.gif 2026 Loeys-Dietz Awareness Month - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/8dd94a98-1693-461f-9554-4d73dee77feb/DIY+More+For++Profile+Frame+%285%29.png 2026 Loeys-Dietz Awareness Month - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1588523a-2e68-4297-9b0d-9be9e88777c0/Purple+and+White+Illustrative+Trend+Style+Father%27s+Day+Sticker+-+2.png 2026 Loeys-Dietz Awareness Month - Make it stand out Stickers for Everyone! Fill out this form to request free stickers. We will send you some to keep, and some to give away. Get Your Freebies → https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/c321af27-1120-4418-bd0c-266522dcc424/kids+activities+cover.jpg 2026 Loeys-Dietz Awareness Month Kids Activity Booklet We’ve created a series of coloring sheets and a word search to keep the LDS fun going at home. Be sure to post pictures of your final creations and tag #loeysdietz to be featured! Download the PDF → https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1740794102157-5F000MIR49OM3WJMEYYM/unsplash-image-tsbcvd1YBZo.jpg 2026 Loeys-Dietz Awareness Month Create your own profile picture, share facts and more with these ready-made resources! Go to the Social Media Toolbox → https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/99f7798b-2ec9-42bf-9380-8f3ddf0f12fa/Georgie%27s+Tshirt+Design.jpg 2026 Loeys-Dietz Awareness Month Congratulations to our 2026 Awareness Month T-Shirt design winners! Georgie and Kimi’s designs are now available in our Bonfire store. Shop for Merch → https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/cfb0ebd7-6116-4c60-bb18-c4e18d219aee/Copy+of+Wear+Blue%2C+Give+Green%21+%281%29.png 2026 Loeys-Dietz Awareness Month - Wear Blue! Give Green! Mobilize for LDS Awareness Day of Giving! Start a fundraiser on Facebook and Instagram! Save this graphic and share it with your network to help raise money for Loeys-Dietz syndrome research and programs. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/f4e0ad98-d826-4951-b6f2-afb74f47ba77/Without+Photo+%281%29.png 2026 Loeys-Dietz Awareness Month - Sharing Your Story Raises Awareness Your journey with Loeys-Dietz Syndrome is powerful—and sharing it can inspire, educate, and bring our community closer together. This LDS Awareness Month, we invite you to share your experience to help raise awareness and support others on a similar path. Share Your Story | Read Our Stories https://www.loeysdietz.org/donate daily 0.75 2024-02-02 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/3856373e-3e25-4cec-8ff6-2ee9e506ac13/UNADJUSTEDNONRAW_thumb_91ab.jpg Donate Now https://www.loeysdietz.org/en/contact daily 0.75 2023-11-09 https://www.loeysdietz.org/en/privacy-policy daily 0.75 2026-02-10 https://www.loeysdietz.org/en/terms-of-use daily 0.75 2022-03-24 https://www.loeysdietz.org/en/get-involved/fundraising-items daily 0.75 2024-11-20 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1605650692560-OVI3PP5QYOAXSFOWU4CA/IMG_8817.jpg Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1605650695923-3EZEC67734GTY1MEQP6F/IMG_8818.jpg Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561076225448-UB32JMKPE4ECPWQ6K6WT/859291_10151247528007331_837946269_o+%281%29.jpg Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561076225387-NNVQYJ5WKPT1UAQ0WEEW/Event+6.jpg Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561076225760-I9XE59XEH8D3BAZX1GF6/event+7.jpg Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561076234799-ZNCNEUFML9L9DDH7QCRA/event_7.jpg Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561076246838-ZH10PK1EEHF12OT2GHC8/website_event2.jpg Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561076249658-D3OYRJ8QMEFZNKJOGSQD/website_events3.jpg Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561076251859-XK6E8USHPXVJ0MWWME1M/website_POTLUCK%21.jpg Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561076256259-3D86FXFZ400C2G06V77V/website-event4.jpg Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561075220837-R53S7J992CV1ER5D9VB0/LDS-Icons_Donations.png Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561075890177-XLQ7X0AVZ9J7HCP7U82Z/LDS-Icons_Recurring-Donations.png Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1596236665274-6A0PW28HER6H3C0AXRZW/LDS-Icons_Virtual-Walks.png Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1561075891820-TW93HY81I9G2WTM6A93F/LDS-Icons_Event.png Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1605649838623-O8MGNO4NWJF22175UQ50/image-asset.gif Fundraising https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1605650247164-WPOUBUW7XV4TTRFRQDVX/Instagram-Logo.jpg Fundraising https://www.loeysdietz.org/en/get-involved/volunteer daily 0.75 2023-12-08 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406825881-9BHAJH77JVNM2DTJ4ZBH/1ykufHKRRdedRogTQNNgJA_thumb_8f53.jpg Volunteer https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406832599-ELZSXIYKKQESIBBR0CEG/19anqn8cTAOy61%2B%2BL%2BtO%2Bw_thumb_9165.jpg Volunteer https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406836701-E9KLBPXRKM06R7VGEAJJ/UNADJUSTEDNONRAW_thumb_91a4.jpg Volunteer https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406842656-U9IZGZ5TKHSR6PKYLYZL/UNADJUSTEDNONRAW_thumb_91b1.jpg Volunteer https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406848984-QLGOYA2SRT3JU1O3763E/UNADJUSTEDNONRAW_thumb_911f.jpg Volunteer https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1551406911258-IHK1UZXQXTVICMGPAN9T/UNADJUSTEDNONRAW_thumb_9140.jpg Volunteer https://www.loeysdietz.org/funded-grants daily 0.75 2024-01-22 https://www.loeysdietz.org/heartofgold daily 0.75 2025-08-13 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/ab3550b5-afff-41ee-a72a-0b231a2c803c/Julie+Heart+of+Gold.jpg Heart of Gold Award - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/2216426f-e4db-45d2-922c-f7f31dceea06/7122023-553.jpg Heart of Gold Award - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/798f0fb4-7e9c-4451-bfd5-01c0b2931566/782022-418_Web-Crop.jpg Heart of Gold Award - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1629218821414-LVAHHX8OKCEPXDNQE8ZT/Screen+Shot+2021-08-17+at+10.46.24+AM.png Heart of Gold Award - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1572210316847-MFNJSHQ6YTK2L6KXESG7/williams.jpeg Heart of Gold Award - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1568243785135-JHDE88C4DICB2MY4JGBZ/IMG_7066.jpeg Heart of Gold Award https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1568243972716-AIDTYQ5BT2O6IB94X8UX/LDSF_Heart+of+Gold+Award.png Heart of Gold Award https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1568404026149-KTFTC6QUG4EG05M7W32B/Feek.jpg Heart of Gold Award https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1568403982533-M1CPKJNHLSP7B8J3466G/Jurgens.jpg Heart of Gold Award https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1568403893855-J1T68YR3MCA6SASJUZ83/Waid.JPG Heart of Gold Award https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1568403857354-JL95LIHNQ4N5RWV28IJW/Peyton+family.jpg Heart of Gold Award https://www.loeysdietz.org/zh/donate-now daily 0.75 2020-07-01 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1543333707272-UM8OSU7MZNXLDHUQVVDK/UNADJUSTEDNONRAW_thumb_8f50.jpg Donate Now https://www.loeysdietz.org/zh/contact daily 0.75 2020-07-01 https://www.loeysdietz.org/joining-the-marfan-foundation daily 0.75 2025-03-01 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1589976478805-2USLROGQEMRKH88AU87X/LDSF-Marfan-Merger-Graphic_Option-1.jpg Joining The Marfan Foundation https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1558532164416-SNSYGIK4VG4HF83HV9PR/Dawn-Reiner-Photo_Loeys-Dietz-Syndrome-Foundation.png Joining The Marfan Foundation https://www.loeysdietz.org/ask daily 0.75 2025-03-05 https://www.loeysdietz.org/subscribe daily 0.75 2023-10-23 https://www.loeysdietz.org/squarespace-testing daily 0.75 2021-11-09 https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1621886989841-PCPO3W8AEE7CVOIHEGOR/2021+LDS+Awareness+Month_Hope+in+Every+Heartbeat+round.png Squarespace testing https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1621886994776-SMORYQBEAQCT2ZGB9QE8/2021+LDS+Awareness+Month_Hope+in+Every+Heartbeat+square.png Squarespace testing https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1621887772325-MNAYCETUZ7UG521NJ38U/2021-Awareness-Month_Square.jpg Squarespace testing - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1622564934644-AGFX56SDC0PUUIK92PHA/2021+LDS+Awareness+Month_June+is+LDS+Awareness+Month.png Squarespace testing - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1621887205163-RG6AN7LKT8ZF4SRZEZNL/2021+Hope+in+Every+Heartbeat_blog+header1.jpg Squarespace testing - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1621887208777-AD3VLRVXK8M90BBJW2S6/2021+Hope+in+Every+Heartbeat_blog+header2.jpg Squarespace testing - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5be355670dbda39d591a525e/1621887486199-GFUQ5KG8VWDT1N78P4YQ/2021+LDS+Awareness+Month_Facebook+header.jpg Squarespace testing - 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