Matters of Heart: August 2019

Thanks to everyone for making our first Loeys-Dietz Awareness month a HUGE success!

This June, we had virtual walks and runs, we had swag giveaways, we had FB sharing of LDS facts and photos, we had "Inspiring Hope" tee shirts everywhere....we had Loeys-Dietz AWARENESS, and it was awesome! Thanks to everyone who participated in this event! If you are interested in helping to plan out 2020 Awareness month, please email us at



Did you check out our new website?

We are very excited about the new look  of our website. Check out all the new stories, resources, and ways to get involved with the Foundation at!

Upcoming Fundraising Events

Join our friends in New York on September 28th for a 5K Run/Walk to celebrate all our loved ones with LDS! Register here.


They say that team work makes the dream work... And we couldn't do what we do to make our dreams come true as a foundation without donors on our team!
Become a monthly sustainable donor of just $25 or more on a recurring basis, and receive some LDSF swag of your choice!


NewslettersJulie Wilson