Matters of Heart: May 2019

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June is right around the corner, which means we're getting ready to kick off Loeys-Dietz Syndrome Awareness Month. Join us in our first event, a Move Your Feet Virtual Run!


Register to run or walk a virtual 5k anywhere and anytime you want to support our cause. All participants will receive a symbolic heart medal, and 100% of the proceeds will go to the Loeys-Dietz Syndrome Foundation!

Interested in getting involved? Invite some friends and get moving!

Check out the link for registration!

LDSF tees: Healing Hearts, Inspiring Hope for Tomorrow

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Show your support for the LDSF by purchasing our 2018-2019 tee shirts. We can't wait to see them all over the United States (and social media) this June!

Tee shirt link

Awareness around the world: Highlighting Netherlands!

Jolein is 7 years old and was diagnosed with LDS at 2.5 years old. They are grateful to the LDSF for medical information and guidelines. Although their family faces a lot of challenges, they are thankful to Take Heart and raise awareness of Loeys-Dietz syndrome.

During our June LDS Awareness month, for every dog harness so ld, the Verhoeven family will donate 1 euro to LDSF. Netherland customers will also receive extra discount and free shipping!

Thanks Verhoeven family for your awesome support!


Huge shout out to Warren Middle School in New Jersey!


Warren Middle school is pitting class against class in a fundraising campaign in memory of Alexa Lawrence, their beloved classmate who passed away earlier this year. The Lawrence family is an amazing part of our community and we thank them and Warren Middle school for their support of LDSF!

Read more about their efforts and walkathon here.

Thank you to the Clingerman and Donohue family for moving their feet for Loeys-Dietz at the Pittsburgh Race Weekend

They had EVERY race covered, including the toddler trot! Thank you to you and all YOUR cheerleaders for all your support of the LDSF!!


Local Meet Up:

The Southern California Meet Up Group will have their first get together in Los Angeles on June 8th!