Inspiring Hope for Tomorrow
The Loeys-Dietz Syndrome Foundation 2018 Annual Report
The last couple of years has been an incredible time of growth for the Loeys-Dietz Syndrome Foundation. With more awareness, literature, and education, people from all over the world are getting the proper diagnosis at a much faster and more accurate rate. It has been heartwarming to see how thousands of people are connecting on a regular basis through our social media, monthly newsletters, biennial conference and local communities. As our community grows, so does the foundation. We now attract the top doctors and researchers in their field who have knowledge and an interest in connective tissue disorders. We work closely with these professionals by providing research grants, fact sheets on the most up-to-date learning, and presentations on the latest research. On our LDSF YouTube channel, our Medical Advisory Board, as well as at our conferences, we showcase the latest clinical observations.
With everyone’s help, the LDSF is working towards Healing Hearts and Inspiring Hope for Tomorrow.
President, Loeys-Dietz Syndrome Foundation