The Loeys-Dietz Syndrome Foundation has developed various resources to support the LDS community.
Resources
Fact Sheets
There is still much to be learned about LDS. These fact sheets, created in collaboration with the National Marfan Foundation (NMF), provide a quick and concise resource of helpful information.
How To Find Out If You Have Loeys-Dietz Syndrome
Is It Loeys-Dietz Syndrome or Marfan Syndrome?
Glossary
The medical terminology associated with a condition such as Loeys-Dietz syndrome can be confusing and overwhelming. The LDSF had developed a glossary to help define terms you may come across in your LDS journey.
School Packet
As a parent of an LDS child, knowing how to communicate with your child's school can be challenging. Find a sample letter, emergency information and school-specific facts in this PDF packet to help open the lines of communication between you and your child's educational institution.
Matters of Heart - Newsletter
Our newsletter is designed to keep the members of our community informed and up-to-date on the happenings of the LDSF.