matters of heart

december 2015   
We are elated to announce that we reached our $15,000 #GivingTuesday goal. That means we'll offer free registration for all children attending the 2016 LDSF Conference.

With your continued help, we can do even more. We pledge to use any additional year-end gifts to reduce the 2016 Conference registration fees for adults. Every additional $5,000 we raise will allow us to cut the adult registration fee by $25. 

Please consider pitching in to help more families join in our 2016 Conference. Simply go to this link to donate. (Remember to contribute by December 31 for your 2015 tax deductions). 

Thanks to everyone who took heart and helped us reach our ambitious goal!

More visibility for Loeys-Dietz in key medical reference

We can't take credit for this one, but it's great news worth sharing. The Harrison's Principles of Internal Medicine, the premier textbook of adult medicine that's updated every three years, has been expanding its coverage of Loeys-Dietz Syndrome. The 2008 edition of Harrison's had one entry on Loeys-Dietz. The 2015 edition now has four entries, describing the implications of Loeys-Dietz across more body systems. It is encouraging to see Loeys-Dietz making it into the world of education resources for physicians and physicians-in-training.
Just 6 months until Conference!  Registration opens in January. 

All children are eligible to attend the 2016 LDSF Conference free of charge thanks to all those who donated through our #GivingTuesday campaign

Conference will be a fun-filled weekend for children of all ages. They'll meet other kids with Loeys-Dietz, sharing similar life stories across the US and the globe. And they will have plain fun--visiting the National Aquarium, playing games, doing art projects, dancing, enjoying a photo booth, getting temporary tattoos, and for those who are up for it, even putting on a performance.
Shopping online for the holidays? 

WIth AmazonSmile, Amazon essentially donates a small portion of sales to the charity of your choice. You sign up once, designate the LDSF as your charity, then remember to shop through smile.Amazon and bingo. Same Amazon store, same Amazon prices, only difference is the donation you're generating. 

To sign up, go to and select the LDSF as the charitable organization to receive donations from eligible purchases. 

iGive also donates a portion of the purchase price to charities. The difference from AmazonSmile is that iGive provides this service for stores across the Internet. Once you sign up, simply click on the iGive icon when shopping at designated stores. 

To sign up to iGive, simply follow the steps through this link.

From all of us at the Foundation, we would like to wish you, and yours, the very happiest of holidays. Thank you all for always taking heart!


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