Months ago, many families with Loeys-Dietz syndrome (LDS) desired to find the families around the United States (and the world) with LDS; to help support them; to help other families get appropriate diagnoses; to educate medical professionals and communities about LDS. Out of that desire, the Loeys-Dietz Syndrome Foundation was formed.
There is still a lot we are learning about LDS, and as a new Foundation, there is a lot we are learning about how to answer the needs of the LDS community. Each day new members are finding us and asking what we’re about, sharing their stories and looking for ways to get involved.
If you have any questions, suggestions, comments, or if you are interested in being involved, fill our a Membership Application on our Volunteer page or email a member of our Board. We're here for you and love hearing your stories, struggles and successes!
Welcome to our community! We're glad you're here.