Emergency Alert Card

The First Source of Information for First Responders.

We hope this tool will help patients/families to always have on hand a source of information regarding Loeys-Dietz syndrome, as well as their personal medical information. If that information is used by first resonders in an emergency situation, or just as a quick reference at a doctor's appointment; we think this could be a very valuable addition to your wallet, purse, or pocket. 

Below you will find three links. The first is a link to short instructional video we put together to show exactly how to fill out and fold this card. The next two are the card itself in PDF format. One version for US/Canada and one for international users. 

If you have any questions about this resource, feel fee to contact us at This email address is being protected from spambots. You need JavaScript enabled to view it.