For more information about family contacts and/or volunteer opportunities within the LDSF, please feel free to contact our Board members or email us at info@loeysdietz.org.
Contact Us
Board of Directors - United States
- Raquel Gomes (Maryland)
- Kate Jurgens (Wisconsin)
Kate.Jurgens@loeysdietz.org
Kate is the mother of four children in Wisconsin. Her teenage daughter has Loeys-Dietz syndrome. - Gretchen Oswald (Maryland)
Gretchen.Oswald@loeysdietz.org
Gretchen is a Genetic Counselor at the Johns Hopkins University in Baltimore, MD and works primarily with individuals diagnosed with LDS and other connective tissue disorders. Gretchen is a co-founder of LDSF. - Sheila Waid (Florida)
Sheila.Waid@loeysdietz.org
Sheila and her four boys live in Bradenton, FL. Her third son, Quentin, has Loeys-Dietz syndrome.
Board of Directors - Canada
- Joseph Galli
jgalli@pentor.com
Joseph is a director and co-founder of the LDSF-Canada. - Johane Gauthier Galli
eyes_ontheball@yahoo.ca
Johane is co-founder of the LDSF-Canada. - Sal Fratino
s.fratino@rosdev.com
Sal is a director and co-founder of the LDSF-Canada. - Francoyse Fratino
flfratino@gmail.com
Francoyse is co-founder of the LDSF-Canada. - Sandra Topper
stopper@rogers.com
Sandra is a director and co-founder of the LDSF-Canada.