Contact Us

For more information about family contacts and/or volunteer opportunities within the LDSF, please feel free to contact our Board members or email us at info@loeysdietz.org.

 

Board of Directors

  • Kendall Bilbow (Texas)
  • Raquel Gomes (Maryland)
  • Barbara & Stephen Hawthorne (New Jersey)
  • Kate Jurgens (Wisconsin)
    Kate.Jurgens@loeysdietz.org
    Kate is the mother of four children in Wisconsin. Her 12 year-old daughter has Loeys-Dietz syndrome.
  • Sarah Moore (Maryland)
    Sarah.Moore@loeysdietz.org
    Sarah is from Baltimore, MD where she is currently a student and raising one child. Sarah has Loeys-Dietz syndrome.
  • Gretchen Oswald (Maryland)
    Gretchen.Oswald@loeysdietz.org
    Gretchen is a Genetic Counselor at the Johns Hopkins University in Baltimore, MD and works primarily with individuals diagnosed with LDS and other connective tissue disorders. Gretchen is a co-founder of LDSF.
  • Robin Pelton (Texas)
  • Beth & Derik Utz (Ohio)
    Beth.Utz@loeysdietz.org
    Beth and Derik are parents of 6 children. Their second child, Alex, has been diagnosed with LDS. The Utz family resides in Ohio, and Beth is founder of LDSF.
  • Sheila Waid (Florida)
    Sheila.Waid@loeysdietz.org
    Sheila and her four boys live in Bradenton, FL. Her third son, Quentin, has Loeys-Dietz syndrome. Please visit his website: Quentin's Quest