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LDSF Conference - June 25 - 26, 2010

We are excited to host our first Loeys-Dietz Syndrome Foundation Conference! We hope that you take the opportunity to ask your questions from experienced physicians, and to meet new friends and have some fun! Can’t wait to see you in Baltimore, Maryland, June 25 to 26.

Use the page to find information about schedule, travel information and a registration form. Check this page for updates as we approach our first LDSF conference. We look forward to seeing you in Baltimore!


Registration

For individuals over 3 years of age attending programming and meals (includes: Friday appetizers and Saturday breakfast and lunch), the cost is $70.00/person. To help us make plans, we ask that you please register by May 15th!

Download the Registration Form

Tentative Schedule

June 25, 2010
Registration check-in: 4:00 - 6:00 pm

Appetizers/Welcome (5:00 - 7:00 pm): Please join us for a time to meet other families and
the LDSF Board. This will be an informal time for mingling, getting an overview of the next day’s events, and a special slideshow of our families! Meet some great people and head out for dinner or drinks with new friends!

June 26, 2010
Continental Breakfast, Sheraton Hotel
Invited Medical Talks* include:

  • Research Update with Dr. Dietz and Dr. Loeys
  • Obstetrical & Gynecological Issues
  • Allergy and Gastrointestinal Findings
  • Cardiovascular surgery
  • Vascular findings outside the aorta
  • Orthopedic Findings

* Our goal is to have physicians respond to YOUR questions, thus we encourage you to send YOUR questions for the physicians to raquel.gomes@loeysdietz.org

Lunch with the Board: Now is your time to help the LDSF plan for the upcoming year.
Meet some of the LDSF Board and discuss what you would like to see happen in the future in terms of education, research and community. We value your opinions and thoughts!

Afternoon Breakout sessions: In these smaller group settings, share experiences and support with others going through their LDS journeys.Tentatively scheduled sessions include:

  • School/Gym issues
  • Transitioning to adulthood
  • Growing older with LDS
  • Mothers only discussion group
  • Fathers only discussion group
  • Adults with LDS

Saturday evening: Choose to cheer on the Baltimore Orioles as they take on the Washington
Nationals in baseball at the famous Camden Yards, or a picnic with music and sights in the Inner Harbor!

Download General Information about the Conference

Teen/Tween/Childrens Program

We realize some of the most powerful moments for our LDS children is when they can just “chill.” We look forward to providing time for fun and connecting for individuals of all age groups! Some of our LDS teens are on the task to help us find the right activities to make sure your children have a blast! Programming for children, tweens and teens will likely take them out to the Inner Harbor for a portion of the day, however, we will be sensitive to the amount of walking. Some of our age breakdown will depend on number and ages of children attending. More information will follow.

Hotel Information

This beautiful hotel is right across the street from Baltimore’s Inner Harbor, convenient to all downtown festivities and Camden Yards!

Sheraton Inner Harbor
300 South Charles Street
Baltimore, MD 21201

410.347.1846 or 800.325.3535

$145/night*
*This rate is reserved until MAY 26, 2010. After this date, the hotel may not be able to guarantee this special pricing. Please mention “Loeys-Dietz Syndrome Foundation” for reduced rate.

CLICK HERE for a direct link to the hotel reservation site.

Flight Information

Baltimore-Washington Airport (BWI) is the closest airport to the city. There are plenty of cabs available to the hotel area (expect to pay around $15-20). Super Shuttle is a shuttle service to and from the airport. You can make online or in-person reservations. If you fly into Washington DC (Dulles/Reagan) or Philadelphia airports, expect to rent a car or AMTRACK. Parking at the Sheraton is $24.00/night.

Tourist Information

Baltimore: www.baltimore.org

Washington DC: www.washingtondc.org
MARC train tickets are around $14.00 roundtrip from Baltimore to Washington DC
distance from Baltimore is about 40 miles

Philadelphia: www.visitphilly.com
distance from Baltimore is about 100 miles

Download a PDF of hotel, flight and tourist information.